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Memories
A MyEpilepsyTeam Member asked a question 💭

I was diagnosed as a teenager. I dont have any memories of my mom helping me when I had grand mals or going to the dr. I just remember my dad .I also wonder if I scared her about epilepsy. Does anyone else remember anything like that?

posted June 20, 2017
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A MyEpilepsyTeam Member

Yeah, totally have mind blocks around these times as a child but its ok. I eventually found a good Neuro, then I prepared all the notes and questions I had and theories and I drilled the doctor. I had everything answered. Even made him go and get the original diagnosis. For me, I needed to cover off on everything before I accepted the truth. It wasn't going away. And that sucked. But it is me. I accept it now and I am growing as a person.

posted June 22, 2017
A MyEpilepsyTeam Member

Np 😉

posted June 21, 2017
A MyEpilepsyTeam Member

You learn u will find the better people around you with our disease it weeds out the ones who aren't strong enough and blesses us with the ones who are the strongest and the ones that AR the most honest my family never felt bad for me they always treated me as if I were somebody regular never gave me a handicap always told me to push and try harder than everyone else and that in the long run was a blessing so I'm telling you as a friend now as family now push through it be strong you're going to lose people cuz they're afraid or they're too weak but you will find those like your father who are strong and courageous

posted June 21, 2017
A MyEpilepsyTeam Member

I was 53 when I started having Grand Mal seizures, 4 sisters & my mother stopped talking to me & my mother kicked me out of the family. I will be 61 in a few months and have sort of come to terms about it.

posted June 20, 2017
A MyEpilepsyTeam Member

I had a really difficult time growing up with Epilepsy. My Mom I felt the worst for. My maternal grandfather had it back in the 1940s. They hid my Mom in closets when ever he had a grand mal seizure. He was physically violent with his.
As a result my Mom had acute PTSD from it. When I had a seizure and God rest her soul she went in total panic mode. She would run outside the house leaving me on a floor ect and phone my Dad who worked just up the street or a really goid neighbour. First question out of my mouth was is Mom okay? When I came to.
Therefore my dad was pretty much always there. My Mom prayed morning, lunch , supper and bedtime. She did just as much as my dad did in my opinion just in a different way. Yes I can relate in a huge way. Hugs to all and sleep @A MyEpilepsyTeam Member

posted June 21, 2017

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