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Has Anybody Developed Nocturnal Seizures After Being Diagnosed With Daytime Seizures?
A MyEpilepsyTeam Member asked a question 💭

In the last few weeks I've woken up feeling very sore or like I was beaten. My tongue looked like it may have been bitten again (hard to tell since now there's a permanent bite mark where I tore it open during a seizure). I was in a daze and had headaches. My boyfriend says I've been groaning a bit kind of like the tonic part of my seizures, but he said I don't have full out tonic-clonic seizures. Any input or advice?

posted June 13, 2017
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A MyEpilepsyTeam Member

I have both daytime and nocturnal seizures. It's very possible for people to not know their having them- some people go years without knowing. I feel I may have had nocturnals the great majority of my life- it was just never recognized until I started having them during the day. My boyfriend also says I moan when I have one. The ones I most notice are grandmals in my sleep. Eventhough I have partials, complex partials, atonics and abscenses during the day. Wouldn't be surprised if I had a smaller one in my sleep. It's very possible and sounds like that was a seizure you had. Talk to your neurologist. For some strange reason, The ones in my sleep are a lot harder to control/have never been 100% controlled

posted June 13, 2017
A MyEpilepsyTeam Member

Yes ,, The nocturnal ones are the one I mostly have. I have been going to a physical therapist that has studied allot about our seizures and it has helped more than expected ..... the pains in my neck and upper back were restricting blood flow and in my opinion causing more seizures...

posted June 23, 2017
A MyEpilepsyTeam Member

Yes, but I can only tell if the covers are crazy, or the bed gets wet. I have fallen off the bed and stayed there asleep, so I bought a queen sized bed, they helps. I worry a little about sudep, by if it happens whatever, or I wake up usually.

posted June 14, 2017
A MyEpilepsyTeam Member

I have not had nocturnal seizures. Will someone on this thread let me know the actual feeling. Do you wake up? It is such a weird disorder.

posted July 13, 2018
A MyEpilepsyTeam Member

Yes, I started with daytime seizures when I was 2 but they evolved into nocturnal tonic-clinic seizures. SUDEP is always in the back of my mind too, but it’s been 45 years and nothing has happened. I do try to eat healthy, get enough sleep, and exercise, and above all, get rid of stressors in my life. My neurologist suggested getting rid of my bed frame so I don’t fall out of bed and pad the furniture in my room...that worked for awhile and then I started wandering around the house before I fall and have my seizure. Can’t baby proof everything:)

posted October 11, 2017

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