The only I was able to go to any event, workshops, and conferences for Epilepsy , was keeping conectect through the Epilepsy Foundation , here in the U.S.A 🇺🇸. I can't answer for the other Epilepsy Organizations from other countries.
But here that's how I stay up to date here..

My family doesn’t really understand except my dad bc he does research on it and he listens to my neurologist but unfortunately my mom and aren’t close, so she just always thinks I’m just trying to be “difficult “. It’s very frustrating. Even when I’m having a seizure she doesn’t know unless I don’t answer her bc she doesn’t understand and she really doesn’t care.

I got married last April and was diagnosed in May. My mother hasn't made the drive to visit since the diagnosis. It's a long drive but she made it before. I don't think she knows how to deal with and doesn't want to see it live.

It's sad there are not an Epilepsy education &/or support group on every block. Like for me it's 2 hours drive to two closes places & husband would need to drive. I may not have GrandMals but side effects of medication makes me different person, lack independence. If no meds would be having black outs. I think he is tired if I even mention anything my body is going through. So alone feeling