I've been trying to explain this for years to my docs, fortunately the one I see now accepts that it is, but doesn't understand it. I can feel my brain before going into a seizure, its been happening a long time and its my main aura, it disrupts my ability to function.. I can feel my brain messing up. When I'm not having seizures I'm still aware of my brain but I've learned to ignore it because its okay. I know that sounds weird.
Feeling weird is normal when epileptic. Everyone feels different cause our minds are too.
Knowing you're having a seizure means your brain is on hold so you can't control your body.
But this explains all those weird "out of body" feelings for you.
Keep in mind it's just a temporary mis-function and after you'll be okay. The way you speak of
ignoring is very helpful in averting a seizure as well.
Hi Adee- You say you're seizure free in your story but the twitches you speak of
are part of a seizure. If you are having the type where you fall down and/or lose
awareness you need more meds to help control them. The side effects of any meds
are better than seizures. Meds for any physical condition have side effects but if this
was a heart problem you wouldn't shun them. You are not weird or crazy at all- you
just have epilepsy-like 1 in 26 others. Among those who have or do are some of the
greatest minds/geniuses in history. If you are so down about this get therapy to help
you feel better/cope with this. Please let me know if you have. Depression is a state
of mind which can be caused by numerous things- more people have this by far than
epilepsy either and therapy will help you to overcome it.
You just used the perfect word for this- weird. Something is suddenly bringing on the
strangest sensations, body movements and thoughts. Your brain's normal pattern is
seizing up; your conscious mind is unable to function so the subconscious takes over.
There's no doubt you feel as described but this is like a dream its not realty. Everyone
has different auras depending on our own pattern when this happens. Its not that Dr.s
don't believe you feel this way they just know that none of this is real.
me too, I get that little time to go somewhere I can fall down if I need to or sit in a good place
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