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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 24, 2017
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Members shared a wide range of personal experiences with temporal lobectomy, from life-changing success to ongoing challenges, in response to... Read more

Members shared a wide range of personal experiences with temporal lobectomy, from life-changing success to ongoing challenges, in response to questions about whether the surgery is worth it. Several members described dramatic improvements, including going seizure-free or reducing severe seizures to rare occurrences, while others shared that results were mixed, with some still experiencing seizures after surgery. A recurring theme was the importance of thorough pre-surgical testing, strong medical teams, and psychological support during recovery, with many encouraging others to weigh the risks carefully with their doctors.

A MyEpilepsyTeam Member

I had a Left mesial temporal lobectomy about 3 1/2 months ago. Knock on wood, I'm doing great so far with no seizures! I did start with a laser ablation, however that did not work. I was only in the hospital for 3 days and 2 nights and was back to work full time as a physical therapist 6 weeks later. Your doctor will be the one to tell you what the best plan is.

April 27, 2017
A MyEpilepsyTeam Member

I had a Right Temporal Lobe Labectomy back in 1994. I had amazing results. It eliminated all partial complex seizures. I think everyone is different. I do have short term memory issues but i have had them my whole life.
I had Enchapalitis at 4.5 years old. It left scar tissue on the whole right temporal lobe. I look at the surgery as a miracle. I do not have any Partial Complex Seizures any more. The surgery did what was intended and i am blessed.

April 24, 2017
A MyEpilepsyTeam Member

I had refractory temporal lobe epilepsy for 30 years. After trying many different medications alone and mixed, along with vagal nerve stimulation, my seizures continued. Recently (about 5 months ago) I had an right anterior temporal lobectomy. The pre-surgical studies needed to qualify me for the surgery were very intensive. These studies are extremely important as they identify precisely where the epileptic zone is and the risks associated with the surgery. For me, the surgery has been an absolute miracle compared to medication and the VNS. I have had zero seizures for the past 5 months. Prior to surgery I was having at least 1 disabling seizure every 2 weeks along with many minor seizures and associated issues. I feel so much better since having the surgery. My risks included some visual impairment and some cognitive/memory issues. But, I have fortunately suffered no side-effects. I have recovered very well with support from family and friends. One caution I make is that my amygdala was removed, which did create some emotional memory confusion from which I have recovered. I seriously recommend psychological treatment as part of the post surgical treatment plan. Again, I think the surgery is without question the best treatment given the appropriate pre-surgical studies mapping the epilepsy zone and good post-surgery care. Having no seizures is amazing and well worth the treatment if the service providers are competent and thorough including psychological comfort/reassurance.

July 30
A MyEpilepsyTeam Member

I had right temporal lobe surgery back in 1988. It was one of the best things I have ever had done. It reduced my seizures from being intractable to rare. The neurologist told me that the pattern of my seizures would change, and it did
I went from having a series of them, in which I would have one every few hours for a matter of days ot onlyo having an occasional isolated seizure. Greatoutcome. I highly recommend having this done if you have the opportunity

July 11, 2022
A MyEpilepsyTeam Member

Thank you Keggers! I really appreciate your kind words! It means a lot!

May 2, 2017

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