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Has Anyone Had A Temporal Lobectomy? What Was Your Experience Like? How Did It Improve/ Affect Your Seizures?

Has Anyone Had A Temporal Lobectomy? What Was Your Experience Like? How Did It Improve/ Affect Your Seizures?

A MyEpilepsyTeam Member said:

Thank you Keggers! I really appreciate your kind words! It means a lot!

posted over 4 years ago
A MyEpilepsyTeam Member said:

Jackieag congratulations 🎉 that worked for you! I am extremely happy someone had a good experience. I know their are good things that happen but they are few and far between. You hardly hear them now a days. I am truly an optimist believe it or not. 😊 just like to warn people to be careful. Thanks for you positive powerful post!

posted over 4 years ago
A MyEpilepsyTeam Member said:

I had a Left mesial temporal lobectomy about 3 1/2 months ago. Knock on wood, I'm doing great so far with no seizures! I did start with a laser ablation, however that did not work. I was only in the hospital for 3 days and 2 nights and was back to work full time as a physical therapist 6 weeks later. Your doctor will be the one to tell you what the best plan is.

posted over 4 years ago
A MyEpilepsyTeam Member said:

I had a Right Temporal Lobe Labectomy back in 1994. I had amazing results. It eliminated all partial complex seizures. I think everyone is different. I do have short term memory issues but i have had them my whole life.
I had Enchapalitis at 4.5 years old. It left scar tissue on the whole right temporal lobe. I look at the surgery as a miracle. I do not have any Partial Complex Seizures any more. The surgery did what was intended and i am blessed.

posted over 4 years ago
A MyEpilepsyTeam Member said:

I had my brain surgery in 1998 . Before the scheduled time to the hospital, my Dr had me do many pretests. They had me do a Psych Test ( a lot an IQ test ) , 4 hour eeg, the WADDA test, MRI and the GRID Test.

when I arrived to the special unit at the hospital, they prepped me up with the Grid. They open part of my skull where the seizures are active a pad strip with electrodes across that area of the brain. Then they connected the EEG electrodes on top my head. Did the EEG/ GRID for 7 days. The grid will help map out exactly where the seizures are . Everyday they slowly took away so many doses of my meds.

Since the surgery my seizure frequency has reduced from sever to moderate and mild seizures. They are still not 100% controlled

posted over 4 years ago
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