Has Anyone Had A Temporal Lobectomy? What Was Your Experience Like? How Did It Improve/ Affect Your Seizures? | MyEpilepsyTeam

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Has Anyone Had A Temporal Lobectomy? What Was Your Experience Like? How Did It Improve/ Affect Your Seizures?
A MyEpilepsyTeam Member asked a question 💭
posted April 24, 2017
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A MyEpilepsyTeam Member

Thank you Keggers! I really appreciate your kind words! It means a lot!

posted May 2, 2017
A MyEpilepsyTeam Member

Jackieag congratulations 🎉 that worked for you! I am extremely happy someone had a good experience. I know their are good things that happen but they are few and far between. You hardly hear them now a days. I am truly an optimist believe it or not. 😊 just like to warn people to be careful. Thanks for you positive powerful post!

posted April 30, 2017
A MyEpilepsyTeam Member

I had a Left mesial temporal lobectomy about 3 1/2 months ago. Knock on wood, I'm doing great so far with no seizures! I did start with a laser ablation, however that did not work. I was only in the hospital for 3 days and 2 nights and was back to work full time as a physical therapist 6 weeks later. Your doctor will be the one to tell you what the best plan is.

posted April 27, 2017
A MyEpilepsyTeam Member

I had a Right Temporal Lobe Labectomy back in 1994. I had amazing results. It eliminated all partial complex seizures. I think everyone is different. I do have short term memory issues but i have had them my whole life.
I had Enchapalitis at 4.5 years old. It left scar tissue on the whole right temporal lobe. I look at the surgery as a miracle. I do not have any Partial Complex Seizures any more. The surgery did what was intended and i am blessed.

posted April 24, 2017
A MyEpilepsyTeam Member

I had right temporal lobe surgery back in 1988. It was one of the best things I have ever had done. It reduced my seizures from being intractable to rare. The neurologist told me that the pattern of my seizures would change, and it did
I went from having a series of them, in which I would have one every few hours for a matter of days ot onlyo having an occasional isolated seizure. Greatoutcome. I highly recommend having this done if you have the opportunity

posted July 11, 2022

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