Does Anybody Have Catamenial Epilepsy And What Their Thoughts Are On It Or What There Help Is From The Dr.s? | MyEpilepsyTeam

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Does Anybody Have Catamenial Epilepsy And What Their Thoughts Are On It Or What There Help Is From The Dr.s?
A MyEpilepsyTeam Member asked a question 💭
posted January 24, 2017
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A MyEpilepsyTeam Member

Epilepsy surgery is brain surgery...I still can't believe my original neurologist said nothing of it. I'm so glad I switched to an epilepsy specialist...HUGE difference!

posted January 26, 2017
A MyEpilepsyTeam Member

Is your neurologist an epileptologist? My original neurologist never mentioned epilepsy surgery, I didn't know it existed till I saw a specialist/epileptologist.

posted January 25, 2017
A MyEpilepsyTeam Member

Yes, that is what I am going through right now, actually my seizures were hard grand mal every month just days before, during or after my cycle. So- my dr put me on the depo shot. the seizures didn't stop, but became light and partial. It's like someone mentioned, the estrogen level is high and progesterone is needed to lower it down. I no longer take depo shots do to weight gain, i'm taking Klonopin. I'm at the pre menopausal age. Sometimes I believe when my cycle ends, so will my seizures.

posted January 25, 2017
A MyEpilepsyTeam Member

I had to google it to see what that was, and it's never been mentioned before, but my seizures are definitely worse when I'm on my period. I was when I had my first grand mal seizure. I've noticed it but didn't know there was a name for it. Let us know if you find out anything for it!

posted January 24, 2017
A MyEpilepsyTeam Member

Yes keppra and zonisamide and folic acid. I've been reading too. Plus a dr.,well gynecologist said it's progesterone tat i need and another article from North Carolina said it's some steroid...ganaxolone

posted January 24, 2017

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