Lately starting this year my VNS (Vagus Nerve Stimulator) has been given me problems breathing to the point Ive been passing out an catching seizures falling on the floor. Blanking out not knowing were Im at my eyes are open but to me I dont think are every thing looks black an I see dots an things look an feel weird an I cant breath Im shaking banging my head on the floor crying an asking for family members its crazy. I dont know if I should turn off the VNS or not. Has any one with a VNS been… read more
I have had a Vegas Nerve Stimulater implanted for 10 years and it took me about six months to adjust to it.
Your issues seem like you have what was called (Grand mal) seizures ,which is the most major level of epilepsy. I've had many seizures that caused me to fall and be shaking and I thought about what you mentioned about yelling for your family.....I had the same problem. It's got alot to do with the feel of the seizure coming on....the feeling is scary and miserable. Your energy gets drained and you're so tired afterwards. That's how it's always been for me.
I get to the point where I can't deal ,being by myself and I end up going over a friend or relatives place for security. I hope this share of experience has been some help to you..
Hi, I also have a VNS, It seems to work better, I have less seizures but when I have had the last two I was sitting down at the kitchen table and everything seemed fine and all of a sudden I went out but I had done so good. And the second time I fell out of the chair. The first one was bad I had to go to go to a emergency room I had a couple of stitches. Be safe my friend. I hope to find out more about about the VNS
Have it checked by the Dr who installed it it sounds like it is malfunctioning not good for yoy
Terry88 the exact things your mentioning when you feel the seizure coming is exactly what I feel an everything all the problems your writting is exactly what I get thank you.
I recently went to the hospital were my Neurologist works at for an appointment for an EEG video testing. It came out the same as always which I'm getting tired of I'm getting the temporal lobe on both right an left side of my brain an I'm getting my psychogenic seizures which are emotional stress seizures. Now they telling me something about I've always had tolic-clonic seizures which I've never knew about I'm getting so sick of this ugh.