Hope do we manage family and social settings in regards to our seizures??
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Hi Sparkleblue and welcome to the site. The best thing to do is to try and make them understand your situation, live with epilepsy. Have them imagine what it's like . Everything they do on a Daily bases and that they take for granted. Things like , driving and going out to a bar and being able to drink an alcoholic beverage. They don't have to worry about, whether or not they're going to loo loose their job from having a seizure or just being harassed and discriminated by others. Explain how it feels when a stranger is looking at you after having a seizure.
There are scenarios that you can use to make them understand. If they have questions answer them to your best acknowledge. Epilepsy isn't understood too well. A lot is based off of fear and myths they may of heard. Hope some of this helped . I wish you luck.
Try this: "Brainwaves are the worst orchestra on earth. Seizures occur when the brainwaves become the Philharmonic." As the people look at you like you have 2 heads, point out that, unless you are speaking with an epileptologist, you know a little more about seizures than whoever is speaking. Then finish it with a polite way of thanking them for taking an interest and you'll say something to your doctor about their THEORIES.
I too would be frustrating, if I work in a hospital and non of the nurses new what to do for seizure first aide. I can understand to point, if the employees work for a different company outside of a hospital, but in a hospital or clinic facility. Come on!! That's just sad!! I alway new that Dr.'s and nurses both needed a crash course on epilepsy, but not knowing about seizure first aide. I'm sorry to hear that.
@A MyEpilepsyTeam Member I love your suggestions...it made my day! I will go forth with that will shut them down!!!!!