My 6 year old is having them and am just wondering about other people's experience with them
You're welcome. I believe one day there will be a cure for epilepsy soon.
Our son was having up to 15 drop seizures a day and thankfully we have them more under control. He does have cluster style occasionally we tend to notice a pattern with changes such as illness, life event, trauma. We generally see them in the afternoons and evenings.
Thank you. It's good to know there are people that have dealt with it before
You're so welcome. I completely exactly what your going through. Keep up the awesome job. I know it's tough but believe me it's so worth it. Our children tend to give us hope and strength that sometimes we never knew we had.
Thanks a million I am recording everything it is scary she has banged her head and bursted blood vessels in her eye when she had one in the hospital I am finding tiredness to be a major factor in this but trying to get a six year old to rest is so difficult I do how ever have a strict bed time routine in place. l have started her on vitamins and she not a fan of sweet things and only drinks water or milk fairly healthy diet. we have had four days seizure free which is a relief living on my nerves and hoping to god things are settling.
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