Regarding Folk In The UK Mainly | MyEpilepsyTeam

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Regarding Folk In The UK Mainly
A MyEpilepsyTeam Member asked a question 💭

I am struggling to find a job that is suitable for all my needs. My Epilepsy is stress and sleep related. I aim for Customer Service (call centre) jobs, which I'm talented at but finding it really hard to find somewhere that understands my needs fully and offers flexibility with regards to my illness. Is there anybody that can help? Specific job agencies? Anyone? I need my life back

posted November 13, 2015
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A MyEpilepsyTeam Member

I understand the ranting part. When I first found out about my seizures ( what I, personally call "the big E"), I went into my own" shell", opening up to only my closest friends. I later saw that it was wrong. Because after high school, I went to college for "forestry" but after having a gran mal seizure one night, they said I had to take my meds. My way of dealing with it was to defy the medications. Bad move! I had to leave college. So, with nothing else to do, I hitched my way across America during the storm of'78 , just to prove that epilepsy is not a disability? That was after I decided to take my meds all the time. I don't want to tell you my whole life story because it will take too much time ( and I put it in my book), but I've never let anything stop me. Even now, I live in a motel, with brain surgery in January at Yale, and numerous Dr appointments until January. I find a way to get up every morning, and be happy about it.
I think that if you could get the aerospace education, there is always a position you can seek there, even with the condition. But I was going to look into the system there to see what kinds of assistance they do have there. I just will have to wait until I'm back from my Dr appointment.
To me, research is good for the soul and keeps me out of trouble, as long as I have nothing else to do. That's unpredictable every day. But I did find about 5 agencies around UK for the disabled which can be easily accessible. I just didn't make note of them at that time, due to my preparation of dinner. You can check them out with whatever web site you have there. I found them on Google here. If you want to try, look for " disability help me in UK". WWW. Disabilityrightsuk.org", or for support: Scope > UK > support. Or scope> UK...>disabled people. Those are what I could find for a start. But if you keep looking and let them know your situation, they may be able to at least guide you in a direction. Good luck.

posted November 15, 2015
A MyEpilepsyTeam Member

Coincidentally, this is what I struggle with. In my head I want to be positive and lead an active lifestyle but it seems everything I try, my Epilepsy flares up again and it's like I'm ticking them off the list of things I can't do. This becomes really frustrating as you might imagine. I do like walking and similar activities but I also don't like being on my own in case something happens, you know? It's tricky.
Ahh that's ironic. A lot of my family are serving or have served in the RAF. And with one of my hobbies being Planespotting. I've never been to Ruislip but have been to many bases in the UK.
This was my plan in life which stemmed, at 16 I left High School with plans to join the RAF but decided to do 2 years of college and then join but just in the middle I was diagnosed with Epilepsy so it kind of put a major stop to any plans I had in the RAF whatsoever.
I was devastated and even to this day I feel like I have let down my family, which I know (on most days) is crazy but it was just out of the blue, like someone had imposed it upon me! lol ...again ridiculous.
Since then, I've been to University and gained a degree in Aeronautical and Aerospace Engineering, which is a great achievement I think but I still can't get past the RAF thing. I think you might guess that I'm very bitter about my diagnosis and I'm fully aware that it might not have been for me, who knows it might not have worked out and I might even be better off now than where I could have been but I guess I'm bitter at the fact I just don't know, hope that makes sense.

Sincere apologies, I've just realised I've been doing a lot of ranting lol Please forgive me

posted November 15, 2015
A MyEpilepsyTeam Member

Thank you for that. But I do hope there is some kind of program for people with disabilities. Since you have that extra time, it is best to make it useful for your future. As for me, I just sit here in my motel room, researching the surgery, along with checking E-mail and FB. On a good day, I'll go for a ten mile or more walk to stay in shape. It also helps with stress relief. Once in a while I'll check out the UK because I was born at USAF in Ruislip. Last time I was there was in'85, when my mom passed. She's from N. Ireland.
But don't let those idle times just go by.

posted November 15, 2015
A MyEpilepsyTeam Member

Thank you very much John. I will do the very same. I figure there must be some kind of organisation that can help but I'm finding it difficult. I will update with any progress.
Good Luck for January Sir :)

posted November 15, 2015
A MyEpilepsyTeam Member

I don't know if something like this would apply to there,but when I had limited satisfaction to finding a good job (in '93), I wrote to a state Representative about the issue, who then referred me to an agency here in CT. Vocational rehabilitation then tested me for my strengths and weaknesses and with that, attempted to line me up with a fitting job. Meanwhile, the casino Foxwoods opened up with the benefit of free medication because they had their own pharmacy. With a little patience and time, I was hired by the next year. That was 21 years ago and I just had to resign my position at the Mohegan sun for the brain surgery I'll have in January. But with all I saved on medication, it was worth it.
By the way, my real interests were science math and outside work. But for the benefits, it was worth it. Maybe research the government agencies for one that we answer you better??

posted November 15, 2015

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