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Has Anyone Else Lost Massive Amounts Of Weight Due To Anti Convulsion Meds?

Has Anyone Else Lost Massive Amounts Of Weight Due To Anti Convulsion Meds?

I have been on seven different medications to control my seizures. After having a status epilepticus seizure for half an hour in VEEG. My neurologist finally agreed that the meds were the problem. I have had every sever side effect regardless of which medication I am on. Has this happened to anyone else?

A MyEpilepsyTeam Member said:

Last year I was on Zonegran, Carbatrol, Onfi, and Trileptol. At my neuro appointment I weighed 122lbs. The next one six months later I weighed 113lbs. Zonegran can cause a decrease in appetite so I just wasn't hungry. We lowered that and I'm back around 118lbs. It took forever for my doctor to believe it was the meds tho.

posted over 6 years ago
A MyEpilepsyTeam Member said:

From the start of 2012 to now I have lost 50 lbs. I know have a form of vitamin deficiency anemia. My current weight is 85 pounds. My DR has taken me off all my meds and I currently use medicinal marijuana CBD to control seizures and THC to control nausea and appetite and insomnia.

posted over 6 years ago
A MyEpilepsyTeam Member said:

I live in Canada so this works a bit different. I have a legal prescription and for the cost of my meds is around 900 dollars per month. I am currently working on getting insurance to cover it. They just denied me and I am going to fight it. I can't take regular medications. I have been on 8 different types with horrible side effects. It is the only thing that works and I should not have to pay for it.

posted over 6 years ago
A MyEpilepsyTeam Member said:

How much are you paying for your CBD ?

posted over 6 years ago
A MyEpilepsyTeam Member said:

I saw someone above mentioned zonegran. I take all generics except for Onfi so for me it didn't make a difference.

posted over 6 years ago
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