My son has had seizures for 2 years, he's now 4 years old. They're about 3 months apart and during them he goes completely limp with no movement at all for about 3 minutes, they also come on without any warning. Then when he comes to he's groggy and irritable for about 30 minutes. There was a lot of back and forth with neurology and cardiology before we finally got a diagnosis in January, which is when we started keppra. He has horrible side effects and another seizure in May, and we… read more
glad I could help. Not everyone even knows what Epileptologist are , or have heard of them. For many areas may not have one of those types of neurologists, whether it be because , those people live in a small country town. Or maybe they just don't have those types of Dr.s in that particular state. I just don't know 100%.
EjParker is right on . Epileptologists is the best way to go , if you can find one in your area. I have one myself. They understand our disorder better than a normal neurologist . You could also call the Epilepsy Foundation in your area and they might be able to help.
My son is exactly like that and has staring as well. His have gone longer. They have him as undiagnosed type.
its sound like NEAD to me ask neurology if they have heard of Non Epilepsy Attack Disorder or NEAD for short check this out on the internet for NEAD
I Too have have that trouble . Most of it are the side effect from the Meds we're using . I myself , am groggy when I wake up. I'm so groggy that, I'm catching the wall to keep my balance until I reach the other room and sit down. Mine lasts up to an hour until I'm fully awake and can walk straight.