Quick Links
Resources
About MyEpilepsyTeam
Powered By
What Is Your #TopTip For Living Better With Epilepsy?
Rest helps me. I feel refreshed! Like my iPhone when I restart it 🤩
My tip for someone would be to consider how much they thought epilepsy might control them. If it was going to be a "part time, no big deal" thing then fine. But if it was going to be something… read more
What’s Your Top Survival Tip For Managing Epilepsy In The Summer Heat?
I have a cold wrap I put around my neck to keep me cool drink plenty of fluids and I have learned the hard way even with sunblock to not stay in the sun more than 30 minutes
How Do You Deal With The Emotions That Are Associated With Your Epilepsy?
Yes, definitely. Not feeling good about Yourself does not help increase Your self confidence. I have had epilepsy my entire life as well. I don’t know about Yourself but being teased does not make… read more
Complex Siezers
Does anyone seen to feel very strange and have to go to bed and sleep for some time a couple of days after getting stressed , or very tired, I have complex siezers
Medicine Reminder?
I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?
I had Blood Drawn the other day. I was supposed to not take my medication until that happened. Now the Pharmacy sets them up. I put the AM meds in a bag and could do that.
Does Anyone Else Feel They Get Treated Less Worthy While Having Seizures?
I have been a part of a group for a longer period of time than everyone else. However, having seizures I can’t show up as much as others do. Others get bonuses for being there more hours while I get nothing when I’ve been there the most amount of years.
@A MyEpilepsyTeam Member Thanks for the hug
What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?
There are many misconceptions which do make it more difficult to deal with people about it.
What Do You Look Forward To Accomplishing In 2023?
Publishing a book by 2024.
Does Anyone Else Suffer From Memory Loss Be It Short Or Long Term ?
It tends to affect most of my personal life. It's quite embarrassing at times, working with a colleague for 3 years and all of a sudden you can't remember something like names. Going to your boss to ask or tell them or tell them something and just stand there because you don't remember. It's frustrating not to mention annoying.
I do not know why the Learning Disability developed. They did not know what it was until I was tested as an Adult. I did not learn how to add, so could not subtract. I could not pay attention over 15… read more
Does Anyone Ever Cry After Seizures?
Right after the seizures stop, boom? You cry?
Hang in there and try and stay pos, I can relate, I'm emotional but I handle accordingly,
Sign up for free!
Continue with Facebook
Sign up with your email
