Complex Siezers | MyEpilepsyTeam

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11094 questions
Complex Siezers
A MyEpilepsyTeam Member asked a question 💭

Does anyone seen to feel very strange and have to go to bed and sleep for some time a couple of days after getting stressed , or very tired, I have complex siezers

A MyEpilepsyTeam Member

I have not had a seizure in the day in a long time. The meds I take are going a good job. However, in addition to loose bowels, a nurse told me the Epidiolex causes my Dry Mouth. That is really… read more

posted September 21, 2022
How Bad Or Good Is Your Memory After Having Some Hard Seizures?
A MyEpilepsyTeam Member asked a question 💭

My life has completely changed and hasn't been the same after I had my first seizure, obviously, but sometimes I feel like my memory has worsened. I had mentioned it to my mom but she didn't really think of it as a problem she saw it more like I'm trying to convince myself of something that's isn't true and that it's all in my head. To be honest it makes me sad because I try to think back at memories when I was in elementary school and they're not very clear. I guess it's normal for one to… read more

A MyEpilepsyTeam Member

Yes you both hang in there an it is different for us in some ways when we have them. I usually see my doctor very 6 months thats when I usually have one but I have been good and hate when they do… read more

posted 17 hours ago
Medicine Reminder?
A MyEpilepsyTeam Member asked a question 💭

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

A MyEpilepsyTeam Member

I had Blood Drawn the other day. I was supposed to not take my medication until that happened. Now the Pharmacy sets them up. I put the AM meds in a bag and could do that.

posted September 15, 2023
What Do You Look Forward To Accomplishing In 2023?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Publishing a book by 2024.

posted June 13, 2023
Does Anyone Ever Cry After Seizures?
A MyEpilepsyTeam Member asked a question 💭

Right after the seizures stop, boom? You cry?

A MyEpilepsyTeam Member

Hang in there and try and stay pos, I can relate, I'm emotional but I handle accordingly,

posted April 11
Long Distance Flights And Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I'm wanting to travel to South Africa but my parents are refusing me to go due to my epilepsy. Any tips for flying long distance?

A MyEpilepsyTeam Member

Make sure you have all your medication and any paperwork required from your doctor. Also, I always recommend (and have) extra travel insurance, as the normal travel insurance won’t cover epilepsy. The… read more

posted October 7, 2023
Does Anyone Else Feel They Get Treated Less Worthy While Having Seizures?
A MyEpilepsyTeam Member asked a question 💭

I have been a part of a group for a longer period of time than everyone else. However, having seizures I can’t show up as much as others do. Others get bonuses for being there more hours while I get nothing when I’ve been there the most amount of years.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Thanks for the hug

posted March 20
What Lessons From Your Epilepsy Experience Are You Applying In 2024?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

De-stress your life as much as possible.

posted 1 day ago
Do You Have A Pet Or Pets?
A MyEpilepsyTeam Member asked a question 💭

I have two former strays. I am embarrassed to say that I like them better than most people lol 🤩

A MyEpilepsyTeam Member

I have 3 small dogs mother father and daughter . And my 14 year old cat..

posted April 10
Do You Notice That Singing Helps You Feel Better?
A MyEpilepsyTeam Member asked a question 💭

I’d rather listen to Stevie Ray Vaughan

A MyEpilepsyTeam Member

I love listening to music. Look online at a Bose website for a good music system. A Bluetooth. All I have to do is keep my IPAD not far from it talk to it and it will play any song possible.

posted February 6
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