Epilepsy

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About me

About me

I have a question can I drive a car or not I haven't had a seizure for about 5 years wat do u think and u respond to me back please.

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A MyEpilepsyTeam Member said:

Goody for you say all you want

posted about 1 month ago
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Memory

Memory

Can you lose your memory with seizures?

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A MyEpilepsyTeam Member said:

Yes u loose memory from seizures desorder...its sad cause u know something but u can't remember the name ,place,or thing

posted 13 days ago
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Do you need a kick in the bu** to get through a bad day? - Sing this!!

Do you need a kick in the bu** to get through a bad day? - Sing this!!

I revised the lyrics to Gloria Gaynor's classic "I Will Survive". Have fun with it!!

"I WILL SURVIVE EPILEPSY"

At first I was afraid
I was petrified
Kept thinking I could never live
With you on my inside
And I spent oh so many nights
Thinking how this was so wrong
But I grew strong
And I learned how to get along
And now you're back
Yes, that’s the case
I just woke up upon the floor
With big ol’ bruises on my face
Doc should have changed… read more

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A MyEpilepsyTeam Member said:

I LOVE THIS SONG!!

posted 5 months ago
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Does anyone else experience depression with epilepsy?

Does anyone else experience depression with epilepsy?

This is my first time posting on a site about my epilepsy, but I feel like I just need to vent to people like me. A little about me: I live in a small town in VA with my mom, dad, and fiancé. I'm turning 25 in a week and I had my first seizure at 17 the morning after my grad party. It was a gran mal and my life just hasn't been the same since. I currently take 350mg Lamictal XR at night before I go to sleep. Some nights I wake up and have bad tremors still.… read more

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A MyEpilepsyTeam Member said:

Susan Noerr, that was my life at the same year. I'm now 40 and they all want me to go to a Home cos I have lived with my parents. There is one… read more

posted about 24 hours ago
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is it normal to get sick after a seizure?

is it normal to get sick after a seizure?

Had grand mal seizure last night, after I came too. I needed help to bathroom & got sick for 20 minutes or so. I have never had that happen before.

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A MyEpilepsyTeam Member said:

Nausea is one of my main symptoms that I'm having a bad seizure. My brain fires, body releases adrenaline and that starts the nausea. This is the worst… read more

posted 6 months ago
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Medicine reminder?

Medicine reminder?

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

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A MyEpilepsyTeam Member said:

a pill minder would be good.

You could keep them in your purse in case you go out so you don't miss the 6 pm dosage.

Cell phone alarm can help alert… read more

posted 9 days ago
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What are your triggers?

What are your triggers?

Some of my triggers for seizures i know of are stress, lack of sleep, miss med, comming off of adrenaline and certain pitch noises.
What are some of yours? How do you avoid or prepare/deal with it.

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A MyEpilepsyTeam Member said:

I know that stress and anxiety can cause them. But I do have insomnia for about 6-7 years now, sometimes Ill be up for mote than 2 days, but doesnt seem… read more

posted 2 days ago
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Long distance flights and epilepsy?

Long distance flights and epilepsy?

I'm wanting to travel to South Africa but my parents are refusing me to go due to my epilepsy. Any tips for flying long distance?

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A MyEpilepsyTeam Member said:

I go to Mauritius every yr and I have been there every yr since I was a teenager and I am 32 yrs old and my mum and dad struggled when I was a teenager… read more

posted 7 months ago
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Hug and Useful

Hug and Useful

Just wanted to make a comment. Now I know I am just as guilty of this social media habit as anyone else. But we are in the habit if we are having bad days or good days by just clicking on the hug or useful icons. When really all of us suffering want someone to talk to or just to know that someone is out there listening and will help in whatever way possible. So to my team and everyone worldwide if you want someone to talk to don't be afraid to ask. Turn 2019 into a year where we can be there for… read more

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A MyEpilepsyTeam Member said:

Sounds like a good idea

posted 4 months ago
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