Epilepsy

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About me

About me

I have a question can I drive a car or not I haven't had a seizure for about 5 years wat do u think and u respond to me back please.

A MyEpilepsyTeam Member said:

I've had this for fifty years and my memory was never really good, got a bull mastiff and she's adorable!

posted 6 days ago

Memory

Memory

Can you lose your memory with seizures?

A MyEpilepsyTeam Member said:

Yes u loose memory from seizures desorder...its sad cause u know something but u can't remember the name ,place,or thing

posted 6 months ago

Do you need a kick in the bu** to get through a bad day? - Sing this!!

Do you need a kick in the bu** to get through a bad day? - Sing this!!

I revised the lyrics to Gloria Gaynor's classic "I Will Survive". Have fun with it!!

"I WILL SURVIVE EPILEPSY"

At first I was afraid
I was petrified
Kept thinking I could never live
With you on my inside
And I spent oh so many nights
Thinking how this was so wrong
But I grew strong
And I learned how to get along
And now you're back
Yes, that’s the case
I just woke up upon the floor
With big ol’ bruises on my face
Doc should have changed… read more

A MyEpilepsyTeam Member said:

I LOVE THIS SONG!!

posted 11 months ago

Does anyone else experience depression with epilepsy?

Does anyone else experience depression with epilepsy?

This is my first time posting on a site about my epilepsy, but I feel like I just need to vent to people like me. A little about me: I live in a small town in VA with my mom, dad, and fiancé. I'm turning 25 in a week and I had my first seizure at 17 the morning after my grad party. It was a gran mal and my life just hasn't been the same since. I currently take 350mg Lamictal XR at night before I go to sleep. Some nights I wake up and have bad tremors still.… read more

A MyEpilepsyTeam Member said:

JohnDufrense:
People who don't have Seizures don't have any idea what it's like to live with
a "Chronic Hidden Disease" and have to deal with it every… read more

posted about 15 hours ago

Abuse of Site

Abuse of Site

Hi, this forum is very important and helpful for those suffering and needing advice. Recently I have noticed people abusing the forum and treating it as a dating site - giving out private email addresses and phone numbers to those that are vulnerable. Please don't abuse the site in this way (I'm not mentioning names but you know who you are).Thank you.

A MyEpilepsyTeam Member said:

It’s a ‘getting to no there r other epileptics’ in the world ... they listen to what grade our epilepsy is & our medication. It could bring 2… read more

posted 3 months ago

Is it normal to get sick after a seizure?

Is it normal to get sick after a seizure?

Had grand mal seizure last night, after I came too. I needed help to bathroom & got sick for 20 minutes or so. I have never had that happen before.

A MyEpilepsyTeam Member said:

Nausea is one of my main symptoms that I'm having a bad seizure. My brain fires, body releases adrenaline and that starts the nausea. This is the worst… read more

posted 12 months ago

Medicine reminder?

Medicine reminder?

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

A MyEpilepsyTeam Member said:

I use a pill box for the week. Morning and night

posted 4 months ago

Long distance flights and epilepsy?

Long distance flights and epilepsy?

I'm wanting to travel to South Africa but my parents are refusing me to go due to my epilepsy. Any tips for flying long distance?

A MyEpilepsyTeam Member said:

I go to Mauritius every yr and I have been there every yr since I was a teenager and I am 32 yrs old and my mum and dad struggled when I was a teenager… read more

posted about 1 year ago

Migraine suffers- there's help

Migraine suffers- there's help

So there's now a name for a MIGRAINE condition called photofobia. It's not a fear Of anything.
It's migraines and other discomforts from different types of light.
Computer screens, cell phones, bright sunlight, indoor lighting. New LEDs, fluorescent bulbs, even snow.

For me I live like a vampire. I can't stand bright light.
For others they get migraines
For others they get from exposure.
(fluorescents make me nauseous).

A couple causes : something about your eyes - cones and rods.
read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member
They are designed to help with computer screen headaches as well. They block all blue rays. No
Prescription required. Your… read more

posted about 2 months ago
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