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I Have The Feeling I Lost My Past,i Can't Remember Almost Nothing?Are There People Here Who Are Having This Too?
A MyEpilepsyTeam Member asked a question 💭
posted May 15, 2016
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A MyEpilepsyTeam Member

Facts.....I'm starting to notice its happening to me slowly...I thought i was just having bad dreams but its true. My kids brings things up and i will tell them i Don't remember and they look at me if… read more

posted 2 days ago
About Me
A MyEpilepsyTeam Member asked a question 💭

I have a question can I drive a car or not I haven't had a seizure for about 5 years wat do u think and u respond to me back please.

posted December 8, 2015
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A MyEpilepsyTeam Member

Thankyou

posted 4 days ago
Memory
A MyEpilepsyTeam Member asked a question 💭

Can you lose your memory with seizures?

posted January 21, 2016
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A MyEpilepsyTeam Member

I have never had so many seizures in a day. After a 5 minute one, they are supposed to call 911. Were you alone? It is sad you lost so much memory. I would not trust anyone to give me any Epilepsy… read more

posted 5 days ago
Does Anyone Else Experience Depression With Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

This is my first time posting on a site about my epilepsy, but I feel like I just need to vent to people like me. A little about me: I live in a small town in VA with my mom, dad, and fiancé. I'm turning 25 in a week and I had my first seizure at 17 the morning after my grad party. It was a gran mal and my life just hasn't been the same since. I currently take 350mg Lamictal XR at night before I go to sleep. Some nights I wake up and have bad tremors still. Growing up I was always the funny… read more

posted March 29, 2018
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A MyEpilepsyTeam Member

Yes all the time mostly what I can and can't do

posted February 21
Does Or Has Anyone Ever Felt Embarrassed About Telling Someone About Their Seizures?
A MyEpilepsyTeam Member asked a question 💭

Or on another note, has anyone ever been a little scared of telling someone you feel like you’re about to have one but end up not? Sometimes I feel like I shouldn’t tell my parents or sister because then they’re going to overreact a little after the feeling went completely away.

posted February 13, 2018
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A MyEpilepsyTeam Member

Try never to be afraid to let someone know that you have the "feeling" . It's better to be safe than sorry. I used to have that fear until I was chilling with my friends ( now they all know that I get… read more

posted April 11
Prolonged Aura With Seizure Cluster
A MyEpilepsyTeam Member asked a question 💭

Has anyone had a prolonged aura and you try to "fight off" your seizure because you know its coming? I was at the grocery stote today and i didnt want to fall down and make a big scene so i tried to calmly go to the register and kind of leaned on my boyfriend and seized in line because i couldnt fight it anymore.. it didnt last that long but i was still out of it until we went to the car and i had the rest of the seizure in the cluster
Does anyone else try to fight the seizure thats coming?… read more

posted February 17, 2018
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A MyEpilepsyTeam Member

My flurries are crazy ?

posted March 26
Do You Need A Kick In The Bu** To Get Through A Bad Day? - Sing This!!
A MyEpilepsyTeam Member asked a question 💭

I revised the lyrics to Gloria Gaynor's classic "I Will Survive". Have fun with it!!

"I WILL SURVIVE EPILEPSY"

At first I was afraid
I was petrified
Kept thinking I could never live
With you on my inside
And I spent oh so many nights
Thinking how this was so wrong
But I grew strong
And I learned how to get along
And now you're back
Yes, that’s the case
I just woke up upon the floor
With big ol’ bruises on my face
Doc should have changed those stupid meds
I should have made him list’n to me … read more

posted April 7, 2016
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A MyEpilepsyTeam Member

I have to make myself get going not only physically but mentally

posted February 3, 2020
Do You Find Seizures Are Linked To Your Emotions?
A MyEpilepsyTeam Member asked a question 💭
posted April 4, 2017
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A MyEpilepsyTeam Member

I have only learned these things from experience and the best some what I have been told. It’s always best to speak to a professional. 🥜 Peanuts

posted 1 day ago
Does This Make Anyone Feel Better About Being Open About Your Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

FEEL GOOD STORY. Yesterday a woman I've occasionally collaborated with through work (but barely know) called me to ask a question. After that, she asked me how I am. I haven't spoken with her in a few years, so I told her about my epilepsy. Turns out, she was diagnosed with epilepsy the year before I was! We had a grand old time telling seizure stories, complaining about how people don't understand and minimize our symptoms. All the stuff we do on here, only she didn't seem to know much… read more

posted January 14, 2021
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A MyEpilepsyTeam Member

Leonard, we have NOTHING to be ashamed of. The same as someone with a cold. Our problem just won't go away. No one understands why we get sick, and only we understand why we have epilepsy. I have… read more

posted May 18
Is It Normal To Get Sick After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Had grand mal seizure last night, after I came too. I needed help to bathroom & got sick for 20 minutes or so. I have never had that happen before.

posted January 25, 2016
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A MyEpilepsyTeam Member

Yes, it is normal. I started having grand mal seizures at 16 (im 21 now) and after every single seizure except the first, I have gotten sick afterwards. Usually I get sick either during the postictal… read more

posted 12 hours ago
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