I've been put up to 1200 mg per day of tegretol retard. This is the maximum dose and seems very high - has anyone else been on such a high dose and did you suffer any side effects?
The secrets of the universe... that is all.
@A MyEpilepsyTeam Member
Exactly
I live in Hawaii and it is damn hard to find a good neurologist that doesn’t just give you meds, then messes with the levels or different drugs. It is also hard to find a good one in general and we do… read more
I have a cold wrap I put around my neck to keep me cool drink plenty of fluids and I have learned the hard way even with sunblock to not stay in the sun more than 30 minutes
Had grand mal seizure last night, after I came too. I needed help to bathroom & got sick for 20 minutes or so. I have never had that happen before.
Thank you! You too!
I have a relaxation cd, that sounds like waves of the sea, it helps you get to sleep, but I can't use it now cause it makes my tinnitus worse. 🌷
There are companies that want people with your skills to work from home. Things will get better 2024! Take care.
Yes, Caffeine is a trigger, for me.
I try to do nothing stressful, watch an amusing tv show: Seinfeld, watch an old amusing movie. I don’t do anything that makes my brain 🧠work hard. Something simple nothing important.