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10977 questions
Carbatrol
A MyEpilepsyTeam Member asked a question 💭

I've been put up to 1200 mg per day of tegretol retard. This is the maximum dose and seems very high - has anyone else been on such a high dose and did you suffer any side effects?

A MyEpilepsyTeam Member

when dr put me on Brand tegretol mg 200 I was taking 5 a day 2 in morning 3 night then it made me blury so called dr told him then he drop it down to one 400mg in morning and one at night 12 hrs apart… read more

posted June 1, 2023
What's The Most Important Thing You Learned About Living With Epilepsy This Past Year?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

The secrets of the universe... that is all.

posted June 21, 2023
What's One Natural Remedy That's Helped In Managing Your Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Exactly

posted January 29
What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I live in Hawaii and it is damn hard to find a good neurologist that doesn’t just give you meds, then messes with the levels or different drugs. It is also hard to find a good one in general and we do… read more

posted April 19
What’s Your Top Survival Tip For Managing Epilepsy In The Summer Heat?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have a cold wrap I put around my neck to keep me cool drink plenty of fluids and I have learned the hard way even with sunblock to not stay in the sun more than 30 minutes

posted January 11
Is It Normal To Get Sick After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Had grand mal seizure last night, after I came too. I needed help to bathroom & got sick for 20 minutes or so. I have never had that happen before.

A MyEpilepsyTeam Member

Thank you! You too!

posted December 15, 2023
What Epilepsy Symptoms Keep You Up At Night?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have a relaxation cd, that sounds like waves of the sea, it helps you get to sleep, but I can't use it now cause it makes my tinnitus worse. 🌷

posted 3 days ago
What Does A Typical Day Look Like For You Living With Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

There are companies that want people with your skills to work from home. Things will get better 2024! Take care.

posted December 29, 2023
How Do Beverages With Caffeine Affect Your Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Yes, Caffeine is a trigger, for me.

posted 3 days ago
How Do You Manage The More Challenging Days Of Living With Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I try to do nothing stressful, watch an amusing tv show: Seinfeld, watch an old amusing movie. I don’t do anything that makes my brain 🧠 work hard. Something simple nothing important.

posted May 13, 2023
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