Epilepsy

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About me

About me

I have a question can I drive a car or not I haven't had a seizure for about 5 years wat do u think and u respond to me back please.

A MyEpilepsyTeam Member said:

I've had this for fifty years and my memory was never really good, got a bull mastiff and she's adorable!

posted 6 days ago

Memory

Memory

Can you lose your memory with seizures?

A MyEpilepsyTeam Member said:

Yes u loose memory from seizures desorder...its sad cause u know something but u can't remember the name ,place,or thing

posted 6 months ago

Medicine reminder?

Medicine reminder?

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

A MyEpilepsyTeam Member said:

I use a pill box for the week. Morning and night

posted 4 months ago

Does or has anyone ever felt embarrassed about telling someone about their seizures?

Does or has anyone ever felt embarrassed about telling someone about their seizures?

Or on another note, has anyone ever been a little scared of telling someone you feel like you’re about to have one but end up not? Sometimes I feel like I shouldn’t tell my parents or sister because then they’re going to overreact a little after the feeling went completely away.

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member it depends... live in indiana my hole live but i had hospitals (sometimes months at a time) in chicago, il (uoc hospital) and… read more

posted about 2 months ago

Driving

Driving

Do you guys drive?

A MyEpilepsyTeam Member said:

Yes I do and rebuilding my old one as well.
They are fitted with hand controls

posted 3 months ago

Does anyone else experience depression with epilepsy?

Does anyone else experience depression with epilepsy?

This is my first time posting on a site about my epilepsy, but I feel like I just need to vent to people like me. A little about me: I live in a small town in VA with my mom, dad, and fiancé. I'm turning 25 in a week and I had my first seizure at 17 the morning after my grad party. It was a gran mal and my life just hasn't been the same since. I currently take 350mg Lamictal XR at night before I go to sleep. Some nights I wake up and have bad tremors still.… read more

A MyEpilepsyTeam Member said:

JohnDufrense:
People who don't have Seizures don't have any idea what it's like to live with
a "Chronic Hidden Disease" and have to deal with it every… read more

posted about 15 hours ago

Carbatrol

Carbatrol

I've been put up to 1200 mg per day of tegretol retard. This is the maximum dose and seems very high - has anyone else been on such a high dose and did you suffer any side effects?

A MyEpilepsyTeam Member said:

When I was 15 I took 7 or 8 myself

posted 7 months ago

Is it normal to get sick after a seizure?

Is it normal to get sick after a seizure?

Had grand mal seizure last night, after I came too. I needed help to bathroom & got sick for 20 minutes or so. I have never had that happen before.

A MyEpilepsyTeam Member said:

Nausea is one of my main symptoms that I'm having a bad seizure. My brain fires, body releases adrenaline and that starts the nausea. This is the worst… read more

posted 12 months ago

Women - do hormone changes throughout the month affect your seizure threshold?

Women - do hormone changes throughout the month affect your seizure threshold?

If so, which part of the month? Have you had any form of treatment to control hormones? Birth control?

A MyEpilepsyTeam Member said:

My seizures seem to happen when my Hormones change with my cycles. I have tried Birth control Pills, and an IUD, and had trouble with them. I'm gonna… read more

posted 7 days ago
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