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What Are The Negative Effects Of The RNS?

A MyEpilepsyTeam Member asked a question ๐Ÿ’ญ
Jefferson City, MO
January 12, 2024
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Temporal Lobe Epilepsy: Symptoms, Causes, and Treatment Read Article...
A MyEpilepsyTeam Member

I always think before I act, & THIS requires HARD THINKING ๐Ÿค”๐Ÿ™๐Ÿพ๐Ÿ™๐Ÿพ๐Ÿ™๐Ÿพ๐Ÿ™๐Ÿพ

January 13, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have had an RNS for 4 or 5 years. I never feel anything so the only negative thing is that they had to change the battery. It was just an outpatient procedure so it wasnโ€™t that bad. They said the new battery will last 8 years or so.

January 12, 2024
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I had several EEGโ€™s before I got the Neurostimulator (RNS) including a surgical one. The bad thing was I didnโ€™t have any big seizures during them so they were a waste. Thatโ€™s why I decided to get an RNS. The RNS doesnโ€™t only help slow seizures down but it also records your seizure information everyday. Whenever I have a seizure or aura my mom will touch my head with a magnet. That will highlight the spot for my doctors. Before I go to bed every night I turn on the RNS monitor and place a wand on my head. It will take a minute or two to download any seizure activity. When itโ€™s finished I hit send and all the information goes to my doctors. When I go see my doctors they get out their monitor and can see all of my seizures and everywhere we used the magnet. Theyโ€™ll write down the information. Most of the lines on the monitor are smooth but when they go to a spot I had a seizure the lines get bouncy โ€”โ€”wwwwwโ€”โ€”. They write down whatever information. Since I do still have some seizures the doctors have risen the amps many times. To do that the doctors just place a wand on my head and do some adjusting on their monitor. I never feel any vibrations from the RNS. So Iโ€™m still glad I got the RNS even though I still have a few seizures.

January 13, 2024
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A MyEpilepsyTeam Member

Thanks a lot!! I'll keep looking into this & know what is going to happen when I talk to the Dr again in February!๐Ÿคž๐Ÿฝ๐Ÿ™๐Ÿพ๐Ÿ™๐Ÿพ

January 13, 2024
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