I always think before I act, & THIS requires HARD THINKING 🤔🙏🏾🙏🏾🙏🏾🙏🏾

@A MyEpilepsyTeam Member
I have had an RNS for 4 or 5 years. I never feel anything so the only negative thing is that they had to change the battery. It was just an outpatient procedure so it wasn’t that bad. They said the new battery will last 8 years or so.

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A MyEpile...

@A MyEpilepsyTeam Member
I had several EEG’s before I got the Neurostimulator (RNS) including a surgical one. The bad thing was I didn’t have any big seizures during them so they were a waste. That’s why I decided to get an RNS. The RNS doesn’t only help slow seizures down but it also records your seizure information everyday. Whenever I have a seizure or aura my mom will touch my head with a magnet. That will highlight the spot for my doctors. Before I go to bed every night I turn on the RNS monitor and place a wand on my head. It will take a minute or two to download any seizure activity. When it’s finished I hit send and all the information goes to my doctors. When I go see my doctors they get out their monitor and can see all of my seizures and everywhere we used the magnet. They’ll write down the information. Most of the lines on the monitor are smooth but when they go to a spot I had a seizure the lines get bouncy ——wwwww——. They write down whatever information. Since I do still have some seizures the doctors have risen the amps many times. To do that the doctors just place a wand on my head and do some adjusting on their monitor. I never feel any vibrations from the RNS. So I’m still glad I got the RNS even though I still have a few seizures.

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A MyEpile...

Thanks a lot!! I'll keep looking into this & know what is going to happen when I talk to the Dr again in February!🤞🏽🙏🏾🙏🏾