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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hello Everyone Does Has Anyone Here Have Experience With A VNS ?

A MyEpilepsyTeam Member asked a question 💭
Phoenix, AZ
September 23, 2023
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A MyEpilepsyTeam Member

Between 2005 and 2010 I had my VNS . I never replaced the stimulator when it died. I didn’t have any luck with it, controlling my seizures my seizures amount didn’t reduce.. My Dr agreed to not continue with it ..

Now just because it didn’t work well for me , doesn’t mean it wont work well for you.

September 23, 2023
A MyEpilepsyTeam Member

Yes. I received my implant on February 2, 2023. My doctor told me it will take over a year to see if it aids me. I am a very talkative person I will tell you what I went through from start.

September 24, 2023
A MyEpilepsyTeam Member

My son has had one for over 10 years. It was hard to tell if it was helping because he has LGS and his seizures are so complex, however, lately it has been helping when he has auras.

September 23, 2023
A MyEpilepsyTeam Member

Hi Derek, I have have the VNS. It unfortunately did not help me with my seizures. Good luck, though!

September 23, 2023 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member yes. I know it did but it is all a training and learning process. I hadn't thought about it in a long time but I can remember some about the magnet at the beginning but now it's just always there. I asked my mom earlier and she agrees that it did help with my seizures.

September 28, 2023

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