Meds Or Not? | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Meds Or Not?
A MyEpilepsyTeam Member asked a question 💭

All AED's have unpleasant side effects - from psychological to physical such as weight gain and weakness.

If there is no evidence that they are improving your epilepsy, would you follow the safe doctor's legal approach and stay on meds, or simply wean yourself off them and see if something bad happens in the future.

Prescribing AED's is basically like throwing a variety of things at a wall in the hope that one will stick. It's not much more advanced than that.

Which approach do you prefer?

… read more

posted August 18, 2023 (edited)
•
View reactions
A MyEpilepsyTeam Member

I was on Zarontin, Penobarbitol, Tegretol, and all the other AED meds. That is why I had Temporal Lobectomy on the right side years ago. I was walking on a main street in the heat and had a large Seizure, went to the ER. I would rather deal with side effects and stay on a combination and dosage that works.

posted August 19, 2023
A MyEpilepsyTeam Member

If the meds aren’t working, then it’s probably time to get a second opinion. I’m not sure whether you already do or not but a specialist should be the one making the decisions about what meds you're on not a Doctor. A doctor can only really make dosage changes not decisions on what meds you take. Generally, as a rule of thumb, you would need three med changes before they would say meds maybe are not going to be the best option.

posted August 19, 2023

Related content

View All
Meds Just A Placebo?
A MyEpilepsyTeam Member asked a question 💭
Does Anyone Experience Thinning Hair Or Hair Loss From Their Epilepsy Meds? My Neurologist Said It’s Common For My Meds, Not Sure Though?
A MyEpilepsyTeam Member asked a question 💭
How Many Different Meds Do You Need To Take To Control All The Seizures Or Can They All Be Controlled With One Med.?.
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in