Here’s a photo of how I download and send seizure info into my doctors.

I'm so scared of the idea of surgery...my neurologist is very interested in me moving forward with it. It's comforting to see that it has worked for so many people.

Yes, everything. Lol. What sort of seizures do you have? Why did you have to have 2 surgeries? How long ago was your last procedure? And what all changes have you noticed since the surgery?

@A MyEpilepsyTeam Member
Well here’s how it works. The Neurostimulator (RNS) not only helps with seizures but it also records my brain activity everyday. Whenever I have a seizure my mom takes a magnet and touches my head to mark the spot where I had a seizure. If we don’t have the magnet it’s all right they’ll still find the seizures. Every night before I go to bed I turn on the RNS and place a wand on my head. It will download any seizure activity. When it’s done I hit send and all of the info goes to my doctors. When I go see the doctors they turn on their computer and can see everywhere I had a seizure and everywhere the wand was used. Most of the lines are smooth but when we go to a spot I had a seizure the lines get bouncy ———wwwwww———. They write down the info. They can even raise the power on the RNS by putting a wand on my head and do some adjusting on their monitor. I never feel any vibrations. So it’s almost like a 24/7 at home EEG.

Mentioned Users

A MyEpile...

@A MyEpilepsyTeam Member
I know what you mean. EEG’s did me no good. Now I’ll never have to have another 7 day stay. The RNS saves the seizures and I send them in to the doctors over a monitor. I only have 1 maybe 2 seizures per a month too.

Mentioned Users

A MyEpile...