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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

So Is Anyone Else Getting The Shakes Because Of This?

A MyEpilepsyTeam Member asked a question πŸ’­
Indianapolis, IN

Just saw a video on FB about a guy that has the shakes so bad that he can barely get food in his mouth anymore and that's what has me asking this question. The first started probably 4-5 years ago and have steadily just gotten worse. I asked my first neuro about them but really haven't bothered since being that they seem really low on my charts of worries, however as they're getting worse it now has me wondering more. It's gotten now to the point where it's very noticeable when I'm eating… read more

May 1, 2023
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A MyEpilepsyTeam Member

It is a side effect of Lamictal/Lamotrigine. It will give you uncontrollable shaking of the body.

May 1, 2023
A MyEpilepsyTeam Member

I would get the shakes! My Epileptologist gave me a cardiac med. it stopped my tremors! I was taken off Depakote . It stopped completely.!

May 3, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, Yeah my first neuro was the same way. Kind of shrugged it off, gave me the normal old "drugs" answer, a pat on the butt, and then a there, there. πŸ™„ Paulette I of course have no clue how your neuros are where you live but if ours got any less uncaring they'd probably just take me in the back of the office and shoot me. Oh and it's always the drugs, the drugs, the drugs. I'm always thinking "uh if you're just going to tell me that it's the drugs anyway then why does our insurance company pay you $200+ for me to come in here? How bouts they save that money and used it toward those four ER runs I had this year for my migraines, another thing that you didn't care about."

May 1, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, oh yeah mungo mine start whenever they want to, however I have noticed that the more weight that I'm putting on my arms the worse it gets. Crawling around in the garden for instance, is a huge strain.

May 1, 2023
A MyEpilepsyTeam Member

I get them occasionally too. My neuro told me that if they occur within two hours of taking the meds then it is a side effect of the medication rather than a direct effect of your epilepsy.

May 1, 2023

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