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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Any Feel Ashamed That They Have Epilepsy And Keeping It Quiet?

A MyEpilepsyTeam Member asked a question 💭
Pasadena, CA

I keep it quiet and I don't want people to know. I've tried hiding but can't because I have seizures periodically.

March 31, 2023
View reactions
A MyEpilepsyTeam Member

Yes at first I did but once I except epilepsy and talk about it the shame went I don't walk round shouting it but it still me just with epilepsy they either like it or piss off can't change it real friends be fine the bull shiters are the once to watch

April 1, 2023
A MyEpilepsyTeam Member

Everyone from school to work has treated me with respect when I’ve had a seizure so I’ve never even kept it a secret that I have seizures.

March 31, 2023
A MyEpilepsyTeam Member

I never made a practice of letting people know but I never held it back if they saw me have a seizure.

March 31, 2023
A MyEpilepsyTeam Member

We all are human ! We all mistakes. I gave money to a Doctor one time. I later found out he was a gambler. He was removed from the hospital where I worked. I had blessings later in my life.

April 1, 2023
A MyEpilepsyTeam Member

Not ashamed I have it. Ashamed my memory is fried. Ashamed I caused it too be worse and I didn't have to. I made stupid choices.

April 1, 2023

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