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Nayzalom And Whom Can Administer.
A MyEpilepsyTeam Member asked a question 💭

So, we are in the process if switching to a new neurologist for my daughter. We had our first visit this past week and he prescribed Nayzalom. My daughter Alicia has never needed a rescue med and I pray she never does
She is 28 and goes out in the community with two different aides, and also participates in Arc and other programs. I was told that noone is is allowed to legally give her the nayzalom in an emergency. I do not understand because obviously she would be unable to give… read more

posted March 12, 2023
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A MyEpilepsyTeam Member

makes no sense at all! some liability issue or a misunderstanding? EMTs & ER will give midazolam or diazepam or keppra even, they will have that with them definitely. These are essential medicines. Perhaps there is some liability form you can write & sign with the carers, clearing them of responsibility of giving up to x mg of midazolam ? The world seems crazier & crazier . Im sure theres a way forward.

posted March 13, 2023
A MyEpilepsyTeam Member

It depends on how much the EMT's are trained to notice if the person is having a seizure. Which isn't much training on people with epilepsy. Most of them are only aware of keeping the patient stable enough to get the patient to ER. Then it is up to emergency to do the rest. Yes, that is true that none of ER will administer a rescue medication because of policy. Which i found out the hard way. Because they don't know what the drug is or what it will do to the patient. The only way to solve the issue is your daughter would have to have someone with her. The policy is designed to let EMT's to do what they are trained to do. They are not trained to be doctors. At least that was what i was told. It may sound harsh and makes us ask, why are EMT's here?

posted March 12, 2023
A MyEpilepsyTeam Member

I know nothing of the drug, but if a trusting neurologist told me how to save my daughters life, I would not hesitate.

posted March 12, 2023
A MyEpilepsyTeam Member

Correct the Emt's that responded to my seizures in 21 laid on my back. Broke my L2 vertebrae.

posted March 14, 2023

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