Awesome!! Thanks for the ideas. I think I will take snacks I like. And your right, with different meds and the types of seizures we have, I'm sure it all plays a part in how our bodies react once we haven't had meds.

@A MyEpilepsyTeam Member
Just keep in mind , we are different. We react differently to medications, have different Epilepsy and seizures. My body was fighting when being reduced on the medication . That doesn’t mean that , your body will react the same. You maybe there for a shorter time. Once you give them the seizures they want , you will probably be out in no time.

But you won’t truly know until you do the inpatient EEG.

One othere thing I did, was bring snacks and cans or bottles of a drink I like, that isn’t Alcohol ( pop, tea, power drinks, juice, special brand of water and ect. ) …

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A MyEpile...

I have hade four different inpatient Videos EEGs for 7days.. before the day of my EEG appt. I would pack a duffel bag up with active things,. I could do in my room. Things lie a puzzle book reading book , hand help travel games , deck of playing cards, Raido laptop or iPad ( which ever generation it was )

At the hospital I was brung to what they called the Seizure Unit. It was fully carpeted and wide walking space. They also had a big leisure room, with a. Tv couches , chairs and a few tables. They also had games and puzzles.

The they got me ready and plugged up with electrodes to the EEG the EEG wires were connected to a long extended cord that could followed me around the Unit. The Drs and nurses wanted everyone active and moving around. We didn’t have to stay in our room.

After the first day my meds started to decreased the med by so much everyday after. They wanted me to show a big seizure. . It took them 7 days decreasing my meds. I was having seizures but they weren’t big ones . So they decided to take a big jump and asked me what I would like , that would trigger my seizures. I could of chosen a alcohol drink, but I was craving a regular ( not diet ) Dr. Pepper soda. I finished one can and started on my second can." Shortly after that I started convulsing a huge seizure. They finally got what they wanted.

After that I was released to go home

Thank you for sharing. sounds like the same experience I had when I did the at home EEG. They didnt see any seizure activity during the day but found they did at night. I am 49 and was just diagnosed last year. Now that I have learned about epilepsy, I think I have always had it and just never knew.. As a child, and early adulthood, I had deja'vu alllll the time!! When the pandemic started, I had to teach from home on a computer with 1st graders... The stress was more than I could handle and I thought I had vertigo because of dizziness, anxiety and panic attacks increased. After an MRI I was referred to a neurologist and a neurosurgeon. I LOVE my neurologist but the neurosurgeon is pushy and wants to do surgery... This is why I'm having the in-patient EEG. There is NO way I'm gonna have brain surgery without them telling me where the seizures are coming from in the brain. Thanks again for sharing your story.

I slept a lot and my only view was of a grey wall lol But it was ok overall.