I had the R.N.S implanted in my skull in September. My seizures have gone way down!! I keep a log and now I have on average 2 blackout seizures and a few auras a month. I use to have a seizure every 9 days! I go in to see the doctor every 3months for a adjustment and it is getting so much better. My advice is to talk with your doctor to see if you are able to get it. Also ask about oxcarbamazapine tablets. Those 2 combinations have changed my life!!

@A MyEpilepsyTeam Member , Our team member @A MyEpilepsyTeam Member can tell of his experience cause he has the RNS. Your friend in Texas, Becky

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A MyEpile...

A MyEpile...

Scares the poop out of me

I had a resective surgery in 2000 and been seizure-free ever since.

I have a VNS (which doesn't require cutting into the skull)
The VNS is working fine for me, of course I still get episodes but not as often or as intense.

The RNS requires that the skull be cut open. I decided
against

We all have Epilepsy on this site I suppose. So we're going to have that diagnosis Epilepsy until the end of time.

Hey, anyone may have a seizure do to various reasons but to officially be diagnosed with "Epilepsy" there are a few tests that need to be done. The when Epilepsy enters into your Healthcare history then it stays.