I suffer from regular epilepsy seizures every 8 weeks, and for the 36 hours of my seizures i suffer every 2 hours a seizure being at it's worst half way through. At all other times of the 8 weeks I am fine.
sorry to hear that Robert. Hopefully one day things will ease for you.
I ran out of medicine and my doctors didn’t put in a refill until later this evening. I don’t know if should not take any medicine this morning or only the 1 out the 2 that i have.
Always call your doctor and along where you get your drugs at every time a drug needs to be refilled
I am not even considering getting pregnant at the minute as I am still young but I am in a steady long term relationship and it does play on my mind a lot because I do want children in the future. I was wondering what medication the doctors would put people on when they’re pregnant? I’m currently on lamotrogine 500mg per day and it seems to be working for me. Also with hormones being all over the place when you’re pregnant what are the chances of having a seizure while pregnant?
I’m thankful every minute of every day that I had kids and neither of them have epilepsy. There’s less than a 5% chance of your child inheriting epilepsy if there is no history of it in your family… read more
Ever since I got sick and got diagnosed with epilepsy, I've become a neat freak and a perfectionist. My handwriting is what I obsess over the most. I am incredibly picky when it comes to my handwriting and worry and stress over it much more than I should. For some reason, when I write a word, sentence or letter and don't like how it looks, I feel the need to erase it and rewrite it. I don't know why. In my head I tell myself it looks fine, but it's like my hands won't listen. I take so much time… read more
Hi Mel,
My writing, memory and attention are getting worse.
I've quit electrictians job.
Keep a routine,
Stay safe
My son has right frontal nocturnal epilepsy. is on keppra 2000mg per day. just had eeg and neuro says its v active. neuro thinks son has constant activity but my son feels completely fine and says he doesnt notice anything going on. has only had 5 tonic clonic in sleep over 5 years. neuro now wants to add zebenix to his meds. son not happy because he feels perfectly fine and is refusing to take new meds. anyone have v active eeg but no obvious seizures?
My most common seizure is the Complex Partial Seizure. Meaning I’m unaware when I seizure. I also have Absence Seizures and blackouts type seizures..
The EEG reads, what ever type of seizures I have… read more
Epilepsy is my worst night mare I wouldn't even wish it on my worst enemy. I have had it for 2 years now and I always feel strong and that I can handle it but once in a while I just breakdown. Everyday is hard and I wish they find a cure for this disease asap because I don't want to be afraid of my own body anymore.. love you all
You’re not alone
Sometimes I just lay down and tear. Or just sleep before my son gets out of school
Stress, depression, frustration. Despite the fact that I’m considered seizure free. Short term… read more
Hello everyone, can anyone tell me about their experience taking lamotrigine and levetiracetam together? I am starting this treatment together and I am very sleepy, weak and dizzy. Is this normal?
Hi, I haven't been on here in like a year but on August 11th I'll be having the RNS surgery and was wondering if anyone else here has had the same surgery. I just want to know how I'll feel afterward and if I'll be in pain.
I'm a film major and I have been offered the role of an art director/cinematographer for a video and I would love to accept the position but I don't want to say yes if the aftermath of my surgery will get in the way. All I would be doing is having zoom meetings with the… read more
@A MyEpilepsyTeam Member. Definitely take the job. you may never get that chance again. Then go with the flow. it will most likely be a good diversion tool and you wont be sitting there focusing on… read more
yes i have focal seizures as well as many others but latly ive only had very small focal seizures due to my vns helping me with my epilepsy
Doc is putting me on some new meds cause the last meds I was on started making me have Grand Mal Seizures. If anyone ever taken it, please tell me the side effects to it. Thanks...
Hi there. I'm on it and am 49. Haven't had a seizure in 25 years. Gums swelling a lot. Made me tired for first year. I would have Granmals also. Taking twice a day 200mg morning/300 mg at night. All… read more