My 9 Yr Old With Focal Seizures And On Three Meds He Has Been Suggested Surgery … Any Thoughts On That Would Be Greatly Appreciated | MyEpilepsyTeam

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My 9 Yr Old With Focal Seizures And On Three Meds He Has Been Suggested Surgery … Any Thoughts On That Would Be Greatly Appreciated
A MyEpilepsyTeam Member asked a question 💭

My son has focal seizures and on three meds .. he still gets seizures auras make it very hard for him … his doctors suggest a brain surgery as he has a brain injury during birth … any advice or recent experience anyone had ….

posted February 19, 2023
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A MyEpilepsyTeam Member

I had my first brain surgery at the age of 23. By that time my Brian was fully developed.

My Epileptologist told me that if this surgery existed whenI was younger, I would of had a better chance , recovering the reduction of my seizures faster an possibility be seizure free.

When younger, the brain is still growing and developing. It could of healed an alternative route in the brain , possibly reducing the effects of the seizures to possibly being seizure free.

posted February 20, 2023
A MyEpilepsyTeam Member

After my successful surgery, I spoke with 15 people about it and two were parents of 7-year-olds. One of them had better control after surgery and the other had total control.

posted February 19, 2023
A MyEpilepsyTeam Member

That’s too bad. I’m sorry.

posted February 19, 2023
A MyEpilepsyTeam Member

His auras are pretty intense, he gets very violent and seems completely lost 😞

posted February 19, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I started having seizures at age 10. I suffered a lack of oxygen at birth and a head injury before I was 2. I was knocked out. My doctors didn’t do any surgeries until I was 17 years old. I was placed on 1 med after another but they didn’t work. So I think he’s still kind of young. Since I was 17 I’ve had a SEEG, Vagus Nerve Stimulator (VNS) and Neurostimulator (RNS). If these are one of the operations he’s going to have let me know.

posted February 19, 2023 (edited)
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