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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Need Help With Disabilty.

A MyEpilepsyTeam Member asked a question 💭
Lewiston, ME
February 18, 2023
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A MyEpilepsyTeam Member

@ProudI have been on Lamictal XR for nearly 18 years. Priority Health pharmacist and Dr are denying the co pay of genetic. They want me to pay the difference which is $4300 if I can’t take generic. I gave summited documentation from my neurologist and these dr’s are saying it’s the same and I will have no impact on changing. Although my dr is sayng that a 4% difference it will lower my seizure threshold. bottom line i take genetic form or i pay the difference of the brand/ generic form.

February 20, 2023 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Contact your local Epilepsy Foundation & you’ll find their contact information at www.epilepsynewengland.org & ask if they can recommend an attorney or someone to help you apply for disability. On their website under “Resources” they have a link for assistance with stuff like that & the website was www.drme.org . But if nothing else ask your local Epilepsy Foundation. My local Epilepsy Foundation had me contact a local family owned law firm & had me tell them that the Epilepsy Foundation said to call them. It took 2 & 1/2 years but I was finally approved in September 2022. Your attorney will do the work after you provide them with the information they need. The main thing I did that I think really helped me was I had a doctor disability paperwork form that my Neurologist, Family doctor & Physical Therapist all filled out noting why they see me & how long they’ve been seeing me, what my conditions are that keep me from working, etc. I think this form is what really helped support my case. So it would help to get something like that. Even with an attorney it might take several tries to get approved. For me I was denied twice by letter & so then I had to do 2 phone hearings with a Judge, a Vocational Expert & my attorney & after that second hearing I was approved. When trying to get approved there’s a whole lot of paperwork every time you turn around. But that’s my experience & the best way I can suggest you look into applying for disability. Good luck. Your friend in Texas, Becky

February 18, 2023 (edited)

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