Has Anyone Else Gone Long Periods Of Time Without A Neurologist Or Epitologist | MyEpilepsyTeam

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Has Anyone Else Gone Long Periods Of Time Without A Neurologist Or Epitologist
A MyEpilepsyTeam Member asked a question 💭

I've been without a neurologist or epitologist for over a year do to the COVID crud my primary Care has like myself been trying to get me into a neurologist. But as of yet no goal.

posted February 10, 2023
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A MyEpilepsyTeam Member

I got a referral to a new one. Last week. Yippee 😁

posted February 12, 2023
A MyEpilepsyTeam Member

This is my biggest problem in regards to neurologists/epileptologists. I was seeing a local neurologist in a small town and I couldn't see where he was doing me any good. I'd go in. He'd look at me, ask if I needed more pills and send me home.

Then I get an article from a co-worker about an epileptologist in St. Louis. He set me up for four tests (I don't remember all of them). He set up an MRI and when I talked to him, I could tell he had more concern for me. He put his foot down when he had to, but he also listened to any ideas I had.

What I'm getting at is I could have spent a lot of time without my neurologist and not missed him, but my epileptologist was a lot of help and guided me all the way. We do need help but we need the right help so look hard for a good doctor.

posted February 15, 2023
A MyEpilepsyTeam Member

I can't find a new neurologist myself. I've been without one for 1yr so far and I've been relying on my primary care doctor.

posted February 14, 2023
A MyEpilepsyTeam Member

No, I see mine at least once a month, in person or Vidapp

posted February 13, 2023
A MyEpilepsyTeam Member

On average for me my appointments were scheduled every 6 mos, sometimes 3 mos. sometimes.

But there has been a couple of times where it was longer than 6mos.. a couple of times was on me . Other times was because , my Dr. Was over book with other patients

posted February 11, 2023

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