Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Neurologist Is Considering Switching My Meds From Phenobarbital And Dilantin To Keppra. I'm Not Sure I Want Her To.

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

I have heard Keppra can mess with your personality. I have also heard that it's not the best option for patients over 65. Can anyone in that age group who takes it tell me of your experience with it?
Thank you.

January 27, 2023
Be the first to like/hug
A MyEpilepsyTeam Member

Everyone reacts differently to the side effects with meds . Yes Keppra can change you behavior, but like myself, I don’t experience that with Keppra and I’m on a high dose.

If you experience bad side effects with any new medication, let the Dr, know. He/she may try you on a new med.

January 29, 2023
A MyEpilepsyTeam Member

Proud TX,
Thanks for your input.
You're right. Dilantin messes up your teeth and gums. With me it's mainly my gums.
Another side effect of Dilantin is it can cause osteoporosis, which I have. The damage is already done.
I'm sorry to hear of the loss of your dad. I also have grand mal seizures, like he did.
I am intrigued by the hereditary aspect of epilepsy. (My younger daughter used to experience absence seizures but she outgrew them.) I used to feel so guilty because I felt her seizures were my fault. Sorry. I digressed.
I already have trouble sleeping. Example: It's 3:09 A.M. on a Saturday here but I can't sleep. I'll either be up all day or doze off for a few hours.
I think at this point that my main worry is Keppra won't be strong enough. I'm tired already. I don't need Keppra to zonk me out.
I need to research why it's not recommended for those over 65. I probably missed the reason.
Thank you again, Becky. BTW my younger Daughter's name is Bekki.
Peggy (not Margaret) in Pennsylvania
PS This is a new neurologist. I switched to her because the last one nearly put me into a coma.

January 28, 2023 (edited)
A MyEpilepsyTeam Member

Just remember that most side effects are potential side effects. And here are the links to the details of potential side effects from Keppra: https://www.drugs.com/sfx/keppra-side-effects.html

And here is the link with all of the other details on Keppra: https://www.drugs.com/keppra.html

January 28, 2023
A MyEpilepsyTeam Member

I think it is best to ask questions like why the Dr thinks the med is better for ya. And weigh the options side effects vs benefits and also know that one person might have awesome results the next might have zero results

January 28, 2023
A MyEpilepsyTeam Member

And when you do tell us I for one would love to hear that ya stood up for yourself even if the Dr still changes the med.

January 27, 2023

Related content

View All

Medications

A MyEpilepsyTeam Member asked a question 💭

Does Anyones Eyes Hurt After Having A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Salt Lake City, UT

I'm Currently Tapering Off Phenobarbital After Over 50 Years Taking It. I'm Tapering 16 Mg Every Otherday. Anyone Else Try This? Scared.

A MyEpilepsyTeam Member asked a question 💭
Kissimmee, FL