Hi! If you are on medicine to control your seizures, do you find that it helps so your triggers don't set off a seizure? Or do you find that you still have seizures as usual when triggered? For instance, one trigger for me is caffeine. I can tolerate very little. If I have too much, I have a seizure. Is this normal since even though I am on medication?
Thanks Alan for your advice. I really appreciate it and I hope that you're doing well also.
Fallen down stairs, had back surgery! Life is a festival! I am glad to text to you!
I give you a hug! New high dose makes me work fast and get grumpy then cannot sleep all thru the night. The Dr said this will pass!
What should you avoid eating/drinking when you haves seizures/epilepsy? What should you eat/drink?
I had my first seizure after eating Chinese food. Dr at hospital said “no more MSG. It’s amazing how much food has MSG in it! (Chips, soy sauce, etc.)
What does everyone mean by what " triggers" you this may be a dumb question but can Episodes/ fits be triggered by things other then like getting scared or stuff like that ?
I feel like when people are talking to me about random things I sometimes get this feeling like a random word almost sets something off?
A trigger is something that will start a seizure. A simple example is not taking medication-that is a trigger. People take medication to stop seizures, so if a person does not take their medication… read more
My triggers are, the heat, strobe lights, stress, lack of water, lack of food, and really cold weather.
My trigger is propylene glycol. If I touch it I'll have tonic clonic seizures within 4 days it's in everything so impossible to avoid
Been there, done that twice, Laurie. Thank God it was trees and no one else. Air bags really do work.
Stress is what triggers seizures... "period"
Remember... stress is a positive and negative thing
I've had a seizure triggered from laughing uncontrollably.🫣
We don't need to be afraid of it though.… read more
Has anyone's seizure triggers changed? For example caffeine or alcohol used to not trigger you but now it does. Or it used to trigger you but now it doesn't. Same with other common triggers...I was just using it as an example.
I was just curious. Because something that is a trigger for some used to never bother me, but now I think it may be starting to sometimes as of recently. Just wondering if it's happened to anyone else.
I'm so sorry you had what must have been very frightening experience. Also, thankful God lead you safely to that cab. God blessed all that day 🙏
I had no epilepsy auras or seizures during pregnancy , breastfeeding and or being on the contraceptive Depo Provera. I don’t know how much longer I can handle this
I was loosing weight because I walked every where and the doctor put me on a high protein diet but I stopped taking my meds for fear of birth defects I ended up having a seizure and my doctor was mad… read more