I ask this one for several reasons. The first is for those who do not already realize that most friends are ready and willing for you to vent. The second is more important to changing my start of venting by letting friends understand that this is exactly what I am doing.

Finally, it is important to hear from friends who do not want to hear you vent (especially depending upon the topic) and might block you (the equivalent of Facebook's stop following a person's postings. Or they might even… read more

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

I'm creating a group on Facebook but I don't know what to call it. Has anyone got any ideas? It is a group for epilepsy.

Please tell me that I am not the only one urging them to tell everyone with Epilepsy/Seizure Disorder about this amazing site.

It has changed my life to come here and make friends who know exactly what it is like to have a seizure. Don't you want everyone to also receive this gift?

Just wanted to make a comment. Now I know I am just as guilty of this social media habit as anyone else. But we are in the habit if we are having bad days or good days by just clicking on the hug or useful icons. When really all of us suffering want someone to talk to or just to know that someone is out there listening and will help in whatever way possible. So to my team and everyone worldwide if you want someone to talk to don't be afraid to ask. Turn 2019 into a year where we can be there for… read more

Like an icon or something that will remain on my cell phone home screen i can just tap on an have access to my profile on the site? Like facebook or instagram has ya know?

We are looking into allowing expanded options for conversations (live free meetings) with friends on this support site. However, we need more friends who are comfortable with the various meeting sites and their apps. We not only are looking for hosts in the range of time zones of the Earth that we have friends scattered in but also people who are skilled in explaining how to get on to the meetings and use of the features to the friends on here are non-techies.

The idea is to allow live… read more

Even though we have been together over 20 years, my husband understand my seizures and why I cannot remember things like I used to. I thought there maybe was a separate website for spouses, parents anyone that was not having the seizures, but had to help the person that was.