I’m currently on XCopri and it’s working well. I was on 200mg daily, but that caused headaches, so in telling my neurologist, he reduced it to 150mg. It’s been a year. Watch what you feel and approximately how much time passes after taking it.
Headaches are a particular pain that may cause seizures. For me personally, I can get headaches due to seizures and any body pain. Again, personally, seizures act up, especially when the immune system is low (ex. When sick of a fever). I know Clobazam and it’s sometimes about the right meds. Congratulations 🎉 Looking forward to the new year? Hope it brings you happiness and health.
I'm taking it along three other anti-seizure meds. Its the only one thats keeping me seizure-free. Gone 9 weeks with since my last episode.
Rachel, have you noticed a reduction in headaches and increased in seizures after the reduction, or is that reduction upcoming? Good luck and hopefully you too will have long-term seizure free state soon too!
My problem is that I have so many medications in my body, that I do not know which are connected to the side effects. For example, I get dizzy spells of variant nature (not related to seizures because I am seizure free -- and I had one that caused a fall while hooked up to my ambulatory EEG earlier in the month. Thus, which medication or combination of medications is the reason for this. My neurologist is pretty sure that it is from the interaction of Lamotrigine and Clobazam (why this begins at least a year after I started is always the question), and he will be reducing my Lamotrigine levels to try to get rid of them. I almost fell back down the stairs to the basement as one happened a few weeks ago as I was bringing up something for my dad. However, I was lucky that I was close enough so I could get it on the floor in front of him and grab the walking bar on the staircase.
And I also have a high pain tolerance level, not to mention prefer no seizures to a little of pain every day -- especially since it was a regular event each day before I got to a seizure-free state.
Happy Holidays!
Sorry for the delay in reading and responding! Adding Xcopri to the other 3 anticonvulsants (neurologist's plan was that if I had no problems with it, then he would ease me off of Keppra) resulted in me being 7 months of being seizure-free today (April 24th was my last).