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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Want To Know How Other People Have Learnt To Live With Epilepsy And It Has Affected Them

A MyEpilepsyTeam Member asked a question 💭
Adelaide, AU
December 3, 2022
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A MyEpilepsyTeam Member

I guess it's kind of a you just get used to it type of feeling when I was younger and would have a seizure I'd be a lot more upset but as I got older I didn't get as upset obviously I'm not happy about it but I just keep going

December 3, 2022
A MyEpilepsyTeam Member

We just have to learn to listen to our bodys and ride with the tidal waves. And don't let ignorance insult you. It can be very hard sometimes though I know.

December 3, 2022
A MyEpilepsyTeam Member

Tip 1 don’t overwork yourself , doesn’t matter about job focus on what your body is telling you .
Tip 2 the meds they will put you on will ruin your life so smoke weed it works more efficiently with epilepsy
Tip 3 everyone will judge and look at you weird like you are missing half a body / some people understand some don’t . As far as that goes just listen to yourself and remove people from your life as needed .
Tip 4 and most importantly if you get fired from your job because you cannot function as normal with epilepsy that is illegal and you can sue so just remember our right are there to protect us

December 3, 2022
A MyEpilepsyTeam Member

One day at a time. Never stop making plans and working towards bettering your future but, don't get too down on yourself when the seizures attack. Surround yourself with people who love you and want to be supportive of what you go through. Unfortunately, the world at large isn't kind to people like us so, it really helps to have a good support network.

December 3, 2022

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