hippocampal sclerosis xcorpy ontozry and epilepsy | MyEpilepsyTeam

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Top 10 Search Results for "hippocampal sclerosis xcorpy ontozry"

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What Does This Mean: "Mild Asymmetric Decreased Cortical Uptake Along Portions Of The Medial Aspect Of The Left Temporal Lobe"
A MyEpilepsyTeam Member asked a question 💭
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A MyEpilepsyTeam Member

The medial temporal lobe (MTL) is a crucial region within the brain, situated on the inner side of the temporal lobe
Hippocampal Region
The hippocampal region, resembling a curved tube akin to a… read more

Any One Else This Is Called Hippocampal Sclerosis (sclerosis Means Hardening Or Scarring).
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Makes sense. Thanks

Anyone Have Info On New Meds, Cenobamate, Aka Xcopri (US) And Ontozry (EU)? Good, Bad, Or Worth Trying???
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Have been taking Xcopri since November 2022. I noticed after taking the dosage within two hours I start to get this feeling of being tired then that feeling gets heavier and so on until I can't keep… read more

Epilepsy And Dementia
A MyEpilepsyTeam Member asked a question 💭

I've had epilepsy all my life. About 20 years ago I had temporal lobectomy surgery. The past few years seizures are out of control again and it's started affecting my memory worse. They did some tests and I was diagnosed with dementia. I asked what kind of dementia and all they say is it's caused from your surgery. Has anyone had to deal with this? Hopefully not, but I'm just scared and confused.

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A MyEpilepsyTeam Member

I'll have to look into this. I get a different diagnosis from each Dr. One told me my memory was gone and my tempro love had disintegrated?? Made no sense
Thank you 😊 you explain it better than the… read more

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Any Possible Connection Between Epilepsy And Scoliosis?
A MyEpilepsyTeam Member asked a question 💭

My daughter was diagnosed when she was 3 years old with symptomatic focal epilepsy. So far we struggle with education,socialising,self harming and most recent scoliosis. She is 11 now. Waiting to find out results from genetic test.

A MyEpilepsyTeam Member

It shows on MRI, my consultant says its moving a bit with each scan.
Blocking signals in the brain
I have a large bump on my head from a fall as a baby.
Problems started after that.
Take care

MRI
A MyEpilepsyTeam Member asked a question 💭

Got results from mri I wish they would not send them to me until after I see doctor lol
So I don’t want to google it cause I know google will have me dying. I know we are not doctors but was wondering maybe someone has had results something like this are understood what it is saying
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FINDINGS: There is an abnormality of the right hippocampal formation. Ventrally, the hippocampal head and proximal body are symmetric and normal in appearance. At approximately the mid body, reference… read more

A MyEpilepsyTeam Member

Regret I'm not a Doctor and don't understand all the medical information either... My suggestion is that you speak to your doctor and ask for more details but in basic form that you understand. I have… read more

ONTOZRY
A MyEpilepsyTeam Member asked a question 💭

I have just been put on ONTOZRY.
Can some people help me out and tell me about it

A MyEpilepsyTeam Member

From what I found out . It’s a European seizure medication
Cenobamate is the generic name brand .

Cerobamate is also generic to the the Brand Xcopri .

Other than than that I can’t give any out… read more

Ontozry
A MyEpilepsyTeam Member asked a question 💭

Side effects

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Has Anyone Here Been On Ontozry/cenobamate. What Were Your Experiences
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I was seizure free for 4-6 months! A lot have been seizure free I wish you the best!

Left Hippocampus Sclerosis (Atrophy) & Frontal Lobe Lesions Bilateral And Sseizure Treatments
A MyEpilepsyTeam Member asked a question 💭

Why does none of my medications seem to control my seizures . Are there special medications for temporalofrontal seizures ? How should I word this to my provider because he don't believe me .

A MyEpilepsyTeam Member

It took me a while to get the right medications for my seizures. Sometimes you have to go to another doctor and get their opinion.