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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Else Been On The Same Seizure Medicine, Dilantin, For Over 40 Years?

A MyEpilepsyTeam Member asked a question 💭
Webster, KY
November 12, 2022
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A MyEpilepsyTeam Member

I was on it years ago it didn't work for me on different meds the question is does it work?

November 19, 2022
A MyEpilepsyTeam Member

I was on Dilantin for 35 years. Then I heard it had my Vitamin D level way down and it was my last med so I just stopped taking it since I had the surgery and was seizure-free.

November 12, 2022
A MyEpilepsyTeam Member

Be careful.

November 12, 2022 (edited)
A MyEpilepsyTeam Member

My Dr. Took me off it when I was 8 or 9 yrs of age. I started taking it at the age of 1. The Dr said that it can be bad for the gums of my mouth.

November 12, 2022

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