Epilepsy Started In My Life At Age 55 And It Came Out Of Nowhere. | MyEpilepsyTeam

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Epilepsy Started In My Life At Age 55 And It Came Out Of Nowhere.
A MyEpilepsyTeam Member asked a question 💭

During a pleasant, perfect late spring bike ride in 2011 (I've biked regularly since age 25) on a great well-known trail, my vision suddenly turned weird. All the beautiful colors of late spring turned suddenly to only 2 colors - red and gold. It stayed that way for about 10 minutes as I slowly biked along the trail. Normal vision then returned. In subsequent weeks other events occurred. I lost the ability to speak properly for 1-2 minutes and the ability to write down simple words in English. I… read more

posted November 5, 2022
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A MyEpilepsyTeam Member

Hi Annie7
My epilepsy is not genetically caused. The experts say genetics 1) starts latest in life in 20s; 2) there are MORE than 12 different gene disorders that cause epilepsy; 3) genetics explain about 30-40 percent of all epilepsy; 4) brain injuries are another BIG cause of epilepsy; 5) another 5-6 causes ( brain injury at birth, drug & alcohol problems encephalitis, etc account for the rest.

posted November 6, 2022
A MyEpilepsyTeam Member

Well, you have my curiosity now. I've had epilepsy since I was three years old. I had the surgery 22 years ago. From the scar tissue, they were able to tell me it was from the 105 fever I had when I was three. I'd ask around and see if someone could answer your question.

posted November 5, 2022
A MyEpilepsyTeam Member

I was classified as "reason unknown" for 55 years, until I started with a new neurologist (one in Boston rather that Southeastern Massachusetts), and I had my first of all of these: 2 brain MRIs, Pet Scan and MEG in addition to EEGs and spending a week in EEG Long Term Monitoring. With all the information they gathered, my neurologist explained to me that my Epilepsy began when I was a newborn and had my first febrile seizures. At the age of 5 (if not before) febrile seizures end. My epilepsy went into a dormant state while transforming to another form of seizures to appear later in life usually puberty).

This and the other detains they explained that I have Epilepsy from genetics.

posted November 7, 2022
A MyEpilepsyTeam Member

KaraC,
Yes they still have lots to learn about Epilepsy. About 2,400 yrs ago, Hippocrates, the ancient Greek doctor, spoke accurately about Epilepsy when he labelled it as a brain disorder. He translated extremely old Hieroglyphics, thousands of yrs older than him, that discussed Epilepsy. And BTW - people that have played football, hockey, etc are developing brain disorders after they reach middle age. Since my 4 brothers and my sister never got Epilepsy, plus never played any sports, my thoughts have focussed on a high school football injury. Take care, keep the faith and help raise Epilepsy awareness. Too many people get Epilepsy every yr. The official medical guess is 2 1/2 to 5 million people annually.

posted November 6, 2022
A MyEpilepsyTeam Member

Hi Anwar,
Not driving? Good idea until you reach about 1 yr of no seizures. These rules vary in different countries but I'm glad I waited. Driving now. Next - so important to find some new friends. Get out to have a coffee or share emails. Great to speak with others. Does an Epilepsy group exist in your area? When Epilepsy enters ones life it is a challenging enemy to fight. But a very important strategy is to not do it alone. Meet others, develop new friends and don't fight Epilepsy alone. My very best wishes to achieve success one step at a time.

posted November 6, 2022
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