Has Anyone Found A Successful Treatment For Catamenial Epilepsy? | MyEpilepsyTeam

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Has Anyone Found A Successful Treatment For Catamenial Epilepsy?
A MyEpilepsyTeam Member asked a question πŸ’­

I was prescribed Depokote 20 years ago but discontinued shortly after due to side effects and it did not control the hormone triggers. I have had auras for the past 20 years but I have now had 2 grand mal seizures in the last 8 months.

posted November 2, 2022
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A MyEpilepsyTeam Member

I have been trying the birth control for help regulating the hormonal timing (had my tubes tied) I have also been keeping a diary for many years. Unfortunately, I just had another seizure 2 days ago...
Thank you for the kind thoughts

posted November 3, 2022
A MyEpilepsyTeam Member

Seizures start in your brain.
Catamenial seizures are triggered by your hormones.

The longest I've ever gone without a seizure (in almost 30years), is 121 days.πŸ€—
On top of my regular meds, they put me on "the pill"(24/7).

I probably would have lasted longer without a seizure, but I was only a teenager then. I was still growing so everyone was worried the hormones could hurt me in the long run... so I went off it.

Since then I've had a trigger removed... a VNS implant... name the med I've tried it... tried the Ketogenic diet(twice)... and I still have seizures.

I do know people who have their meds and/or surgery, and never had another seizure again.

Everyone's seizures are different because everyone is different.

I hope you find the treatment for you to free you of your seizures.πŸ˜‡

Write down when your seizures and cycle happen. The good thing about this type of seizure, is that you can have an idea of when you'll have them.☺️

Take Care.

posted November 2, 2022
A MyEpilepsyTeam Member

Sorry no. I may have always had that kind and just never noticed how bad because Ive had epilepsy since 8 weeks old. I did have a ton during my pregnancies which makes me question it. I did notice that when I hit 40 they came w/ every cylce start and that is every 3 weeks or so. I wish you the best.

posted November 2, 2022
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