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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Loosing Your Bladder During A Seizure?

A MyEpilepsyTeam Member asked a question πŸ’­
Lakeland, FL

Will you always loose your bladder during a seizure? Or can you have a seizure and not wet yourself. This might be embarrassing but after i had a pretty good seizure I went to the hospital and he said because i did not bite my tongue during the seizure and i didnt loose my bladder that I for sure didnt have a seizure. I said for 1 i had my teeth out because i wear dentures. So kinda hard to bite your tongue when you have no teeth and i had just went to the bathroom right before i had the… read more

October 27, 2022
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A MyEpilepsyTeam Member

Not all doctors know everything, not all seizures present the same and for him to say your not actually having a seizure because you didn't loose bladder function or bite your tongue shows his not a very educated in that area .
if these seziures or episodes are new and you haven't seen a neurologist my advice is go get a referral from your doctor to go see one .
You may have non-epileptic seizures due to stress or some emotional trauma but that isn't for me to diagnose you need to seek a proper medical assessment by the right doctors.

October 28, 2022
A MyEpilepsyTeam Member

I always keep an extra pair of pants, underwear, and shirt in my car trunk as a backup.
It only happens 1-2times a year and I'm usually at home... but I've been at an event before where seizures happened.πŸ€—
I was able to change my clothes and no one seemed to notice.
Precaution.πŸ˜‹πŸ‘
I had a paramedic tell me once that I'd die if I didn't go with him to the hospital.🧐
You just have to laugh at it I guess.🀣

October 28, 2022
A MyEpilepsyTeam Member

Yes! That kept happening to me during night seizures alongside with somnambulism (one day I literally went out in my underpants only and it is a great luck I had not been raped or something)!
After reducing some stress I think, that did not happen for 11 months to me now. Just know that you're not alone and you're supported!

October 28, 2022
A MyEpilepsyTeam Member

I know how you feel, the trauma of seizures is enough without having to wait around for incompetent doctors.

October 27, 2022

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