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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Rns Device Implant

A MyEpilepsyTeam Member asked a question 💭
Newmarket, TN

I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.

October 27, 2022
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A MyEpilepsyTeam Member

I have both the VNS & RNS they reduce the strength of thee seizures. My seizures last about 3-5 mins now. Pending on how much meds you’re on, is what you need to think about. Good Luck!!

October 29, 2022
A MyEpilepsyTeam Member

There was a plan to have that done to me. Yet, as one other mentioned, "IT COULD TAKE YEARS BEFORE ONE SEES THE BENEFITS OF THE RNS IMPLANT" and I am just not willing to wait that long for the outcome, with the possibility of things not working well. Therefore I just said "No thanks" I'll pass.🤞GOOD LUCK, IF YOU DECIDE TO GO FOR IT.

October 29, 2022
A MyEpilepsyTeam Member

I got my RNS in April 2022. I'm having almost no seizures! The few that I'm having are minor and they are zapped so they aren't long in length. They are starting to increase the strength gradually.

October 29, 2022
A MyEpilepsyTeam Member

I got mine in September 2022. It has been 4 weeks since surgery.
They said it can take years to see real results. So far my seizures have increased. But yeah, I’m hopeful for some relief.

October 29, 2022
A MyEpilepsyTeam Member

I have not had it done , but they do want me to have one of the NeuroPace RNS Devices implanted. I just ha e to go to my phase 2 test to make sure it will work. I am a little hesitant for one reason only. I had one friend get one of these and he later had a stroke and could no longer use the right side of his body. However, the odds of this happening are slim, but I suppose it comes down to a risk versus reward basis!

October 29, 2022

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