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I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
@A MyEpilepsyTeam Member
I have had the RNS for several years now. I mainly had it implanted because I had previously had a lot of surgeries where the doctors wanted to gather information on my seizures but I didn’t have any of my bigger ones for them to see so they were all a waste. I have had seizures for 31 years now and I usually will just have 1 or 2 seizures per a month so I wasn’t expecting the RNS to make me seizure free. I chose to do it because now I can send seizure activity to my doctors everyday. Now if you have seizures more often it could possibly slow your seizures down. The RNS records my brain activity 24/7. Whenever I do have a seizure my mom touches my head with a magnet and that marks the spot where I had a seizure. Right before I go to bed I turn on the RNS monitor and stick a wand on my head. It will take a couple minutes for it to download. When it’s done I hit send and all of the info goes to the doctors. When I go see the doctors they get out their computer and can see everywhere I had a seizure and everywhere someone touched my head with a magnet. They gather information about my seizures too. Since I have continued to have seizures the doctors have raised the amps on the RNS. To do that I just have put their wand on my head while they do some adjusting on their computer. I never feel any vibrations or other things with the RNS. So hopefully it will help slow your seizures down and your doctors get more info on your seizures.
@A MyEpilepsyTeam Member
I have had the RNS for 4 years 1 battery replacement and a ton of adjustments. When I first got it i was having 12-14 seizures a month. Now I'm down to 4-6 so cut in half and some of them I barely even know I have.
@A MyEpilepsyTeam Member , You can reach out to @A MyEpilepsyTeam Member & get feedback from him because he has the RNS. I hope it works out well for you. Wishing you all the best. 🙏 Your friend in Texas, Becky
My MDS said RNS not for me. I will pray you have success with your implant. Vanderbilt is a great hospital! 🙏🏻✌️🙂👣🐾🐾
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