I'm homeless and have been for the past 10 yrs and have been experiencing horrible things but don't have anyone to talk to that can understand coming from someone that has seizures too. My seizures aren't everyday but effect my everyday life. So I'm hoping to find someone that knows what i mean.
I’m always discussing my experiences, and feeling, living with Epilepsy. There isn’t one person that I’ve spoken to , who hasn’t talked about their epilepsy. We all spoke out about our Epilepsy. Giving each other advice, support, and sharing our experiences and feelings with Epilepsy.
Sorry to hear that why are you homeless is they no one to help you find a place have you got a doctor my be he could help as it not safe to be sleeping outside see your neurologist shit sleep not drinking enough water and not taking medication you have to be strong as it your health you have to take back control not epilepsy control you my friend I understand how hard it s being 😙 bless you it a start coming on here
May I ask why are you homeless?
I guess what I'm having difficulty with lately is that certain things i never noticed effected each other and for awhile i was leaning that on not paying attention enough but recently it occured to me that maybe my lack of attention was also being a result of seizure activity.ive never really had control over my seizures but they are more frequent the past 2-3 years and seem to be changing how long it takes to speak after, or how much memory is gone and how long before it comes back. I'm not sure if the other difficulties i experience sometimes daily are connected to seizure activity. I guess i should make an appointment with a neurologist soon. That will be helpful. Thank u for taking time to read and reply to my question for those who did. It really means alot to me at this time of my life. I hope that everyone who is struggling with epilepsy is able to find at least one coping strategy or anything that helps to soothe the effects from seizures. I'm still terrified when I wake up most of the time. I've had them for nearly 20 years. I wouldn't wish this on anyone. The worst part for me being outdoors is that sometimes I'm in public or even just around some people that arent safe to be unconscious around and don't realize until after bad things happen when I'm too weak to defend myself. Now having to deal with flashbacks of bad memories randomly flooding in. And trying to hide the unstable emotions from those around me so i don't appear weak anymore. I'm getting so tired of everyday. It doesn't seem worth torturing myself anymore. Things like eating and drinking just prolong the suffering. Why can't I just not and end the suffering sooner.
@A MyEpilepsyTeam Member
I usually have 1 or 2 seizures a month that will last maybe 5 minutes but that effects my life everyday. I still have to live with my parents at age 41 and have never driven a car. So I know exactly how you feel. They even effect my memory 24/7.