I keep telling each and every receptionist, medical clerk, RN, and doctor, until they answer my questions. I am never embarassed to say anything in the doctor’s office, also it helps that I talk loud. They answered my questions because the do not want me to repeat it for the 50 a 11 times. NEVER STAY SILENT.

I insured many people that were misdiagnosed and the information was in their medical file. Insurers would send for documentation and receive the misdiagnosis as ammunition not accept the person. Then the battle ensued!

@A MyEpilepsyTeam Member ...regarding your coment about the 'why bother asking' part. mom is a med biller and works at a family drs office. i know behind the scenes stuff (at moms work). 1st the nurse will write all the info on the 'puter pre dr (when we are sitting on the med table. dr will come in and do his stuff... and then walks to the counter with the receptionist. dr will relay what you and the dr said (from saying to typeing) without saying too much (dr/patient confidentialty). thay are the ones that give you the bad advice.
as for my advice... read everything you know about this epilepsy. trust your gut feeling. be assertive. ask question... get answers, if you dont like the dr... get another dr. how many time i or mom (i was a kid with uncontroled seizures) have fired drs... i lossed count at 150 (no joke). most drs only know med and surgery. i wish student have a class on alternative meds to become drs and not a 'after drs' corse.

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A MyEpile...

I have found it common that doctors manipulate things for their own convenience. Not all will do this but many will these days for their own convenience or liability. You just have to keep trying to find the good ones. Unfortunately alot of them are booked out.

First, you should tell your primary doctor. My primary request blood work/unirary test every six months. But this year she requested more test because my test was irregular and referred me to a kidney doctor. The kidney informed to tell my neurologist. I have an appointment on November 8.

Always talk to your primary first. Your primary has a collection of all your records, and can refer you to the next doctor.

I am going to say this again, never, never leave out anything when conferring with your primary.