Hi All🤓 ~~ Just Wondering, Does Anyone Have Seizures That Are Different In That They Never Lose Conscientiousness? | MyEpilepsyTeam

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Hi All🤓 ~~ Just Wondering, Does Anyone Have Seizures That Are Different In That They Never Lose Conscientiousness?
A MyEpilepsyTeam Member asked a question 💭

I have been having seizures (episodes) for a little over two years, not fully diagnosed as epilepsy, but perhaps another (very similar) illness? Thank you in advance. 🙏🏼

posted August 20, 2022
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A MyEpilepsyTeam Member

Linda6 I haven’t been on this site for a while. but I started taking lamotrigine and it helped so much, I finally feel like I have a life again. My neurologist put me on 200mg of lamotrigine and it literally changed my life. It’s been a journey finding the right dose, still had some seizure/auras on 200mg (but they were so much less intense). I’m now on 275mg once a day and it finally feels like we’ve found the right dose for me. I’m ao sorry you haven’t gotten treatment yet, my doctor said in the beginning that it could be epilepsy but she wasn’t sure but that we should just try and see if it the medication works and it did. She’s not willing to put a diagnosis on me just yet but she’s pretty sure it’s “Complex focal epilepsy without loss of consciousness”. Aince finding the right dose all my symptoms went away. I really hope you get help and maybe suggest just trying some medication just to see if it helps!

posted November 16, 2023
A MyEpilepsyTeam Member

Linda6 I basically have the same symptoms as you. I Started getting these symptoms in April. I’m not officially diagnosed yet, but I’m starting treatment in a few weeks. I’ve never been able to fully describe and put it into words what I feel as good as you just wrote. Thank you 😊

posted December 25, 2022
A MyEpilepsyTeam Member

Yes, I have never lost consciousness, tho one of my many symptoms include EXTREME TIREDNESS that abates as soon as the event is over. Mine also last anywhere from 5 minutes to the better part of an hour and now and then they come and go over a period of three hours, at different lengths and intensities. They all either start with chest pain or end with chest pain - the chicken or the egg? Is my ongoing question. I do “stare during most episodes (which include left side losing strength, balance, difficulty walking (left side) left hand rigidity and jerking (intermittently) dizziness, nausea, headache, sometimes shaking inside or outside on both sides and stomach pain 50% of the time. Never want to talk but I can - tho not well during the worse episodes. Thanks for listening. I wish us both a seizure-free day!!! 🤓 (It’s as if each one of us suffering with seizures has a different experience - frustrating to pinpoint specific diagnosis/treatment. 😔) Keep the faith 🙏🏼

posted September 24, 2022
A MyEpilepsyTeam Member

Yes most of my seizures don't cause losing consciouseness.I have seizures on both sides of my brain that's why I could have the vagal stimulator.the worst thing that happened when I had a seizure was when I lost consciousness and had a terrible accident and ran over a stop sign.so I can't drive anymore

posted August 27, 2022
A MyEpilepsyTeam Member

Yes, but now my seizures are changing which are causing me to nearly pass out

posted August 22, 2022

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