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Xcorpri
A MyEpilepsyTeam Member asked a question 💭

Who’ve taken this and how do you feel? Doctor just put me on this but she said i might hve a rash.

posted August 15, 2022
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A MyEpilepsyTeam Member

The important things to remember about side effects from medicines is there are usually about a hundred potential side effect with each medication. And if you have one, is it bad enough to come off of a medicine that has been helping you?

I am on many medications for many things, thus it is difficult to tell which comes from which medicine because there is that general group of side effects.

In my personal opinion, it is better to have the side effects (as long as no major risk or deadly side effects) if we can achieve. Yes, I am on 4 anticonvulsants which means more headaches, body aches and even some dizziness when I wake up. However, in a few days, I will be seizure free for 4 months.

It is all about making your personal decision on which is worse pain for you.

posted August 20, 2022
A MyEpilepsyTeam Member

I take Dilantin & it has been a lifesaver for me. Aside from being a little tired at times, I don't have any side effects. Thankfully,I'm also seizure free for 6+ years.

posted August 16, 2022
A MyEpilepsyTeam Member

I have been taking it for a little over 4 months, and I have no rash. However, I almost to 4 months seizure free (last seizure was 4/24/22).

posted August 16, 2022
A MyEpilepsyTeam Member

I'm on it and it makes me feel very tired. That's why my doctor said I can take it at night.

posted August 16, 2022
A MyEpilepsyTeam Member

I've gone almost 2 months seizure free thanks to this.

posted September 22, 2022

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