@A MyEpilepsyTeam Member
I’m 40 and I work at a grocery store but being disabled I can only work about 10 hours a week. I’m not even allowed to go outside and get carts because if I had a seizure I could get hit by a car.

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A MyEpile...

I have worked 11 years as a janitor don’t know if I had more than one for sure or not because it was just me dumping trash and sometimes would get yelled at for skipping spaces but when I thought I could do more infront of people and not part time I had them in front of people for the first time still kept my job with my doctor note because I never told them and am back to doing it part time. I have a degree in graphic design the computer can trigger them if I am on it long enough I still do digital art with my experience.

I'm going to be honest to a fault here.
I tried getting disability due to more frequent and stronger focalized and refractory seizures as of age 40..now 44.
No one believes me. They cant see the disability, therefore it cant possibly exist. Even with 38 years of documentation!

I'm curious too about all of this. I've been working away and managing to deal with it for years, putting off the inevitable. But now my memory/cognition have just gotten hit too hard and I've had to shut my own business. I'd be happy doing anything, I like keeping busy and have no ego attachment - I'd be fine selling cars or washing dishes. But these things have gotten too dangerous for me to work for somebody else. (Mostly just falling over randomly, but now and then crap like my fiance having to grab me to stop me from jumping over the couch so she can administer rescue spray!). And so I'm facing facts and I'm going to have to look at disability. And I lived in a bubble and didn't pay much attention, but I've never spent much time around anybody on disability, and know very little about it.

The disability office. It doesnt help that people look at me and think I'm 28-30. My seizures arent neccesarily close together, and some days they are mere tics. But seriously 38 years of medical documentation! And I get dismissed. Our system never ceases to amaze me with it's levels of idiocy.