When did you get it?
1980. But they found out later that I was born with it!
That's why I asked the year as well as changes concerning food, technology, shots, diseases, pollution, etc
TBI is difficult Mine was 7-2012
I went back to work after craineplastomy. Stress of corporate work place and scar tissue caused my Temporal Lobe Epilepsy 2014. I saw many local neurologist who could not get siezure control or were not capable of correct diagnosis. My Primary Care MD referred me to Mayo Clinic Epilepsy Monitoring Unit Jacksonville FL
I spent 1 week on 24/7 EEG MONITORING. Sleep deprivation loud sounds strobe lights and captured siezure activity and found the focal point of my siezure .I am thankful to be granmal siezure free since January 2019.THANK GOD! I now have Skype appointments with MayoTEAM Primary Care MD and I every 6 months. I see Primary Care MD every 3 months. All other types of siezures have dropped to ZERO
@A MyEpilepsyTeam Member A major problem for us was that research did not prove until 1995 that the epileptic partial seizures existed and likewise more details were known about the absence seizures. Thus, as my mom explained to me, she thought they were "Johnny being Johnny" moments when I suddenly went silent during a conversation or simply got up and walked away. And the neurologists had no clue, thus anything that was not a falling seizure in a teenager or an adult was diagnosed as panic attacks or pseudo seizures. And unfortunately, since research has not finished and been published to prove that the EEG can actually not display the changes that should be shown when someone is having an epileptic seizure while hooked up to an EEG. And as a result, most neurologists will not let their eyes and experience allow them to believe that regardless of what the EEG is not showing them, that they are witnessing an epileptic seizure. Thus even now people are being diagnosed with pseudo seizures, panic attacks, etc. when they have epilepsy (and what is worse this is happening when the patient had already been previously diagnosed by another neurologist as having epilepsy).
Hello, I hope you have found good medical professionals and treatment RX. 😊 Happy to help you anytime. This site has helped me understand the importance of communicating with peers who understand what life with epilepsy is daily. The people I have met here are very kind and willing to share knowledge. Please feel free to chat with me. I have been granmal siezure free since January 2019.THANK GOD! I suffered a traumatic brain injury 7-2012. Went back to work after craineplastomy. Stress of corporate work place and scar tissue caused Temporal Lobe Epilepsy 2014. After trying to find local neurologist my Primary Care MD referred me to Mayo Clinic Epilepsy Monitoring Unit Jacksonville FL. Now I have Skype appointments with MayoTEAM and Primary Care MD every 6 months. BLESSED with Josie my Siezure Alert Response Service Dog. She's always at my side and works hard to keep me safe. Good luck my new friend. GOD BLESS YOU AND YOURS!💞👣🐾💜☝
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