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About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Epilepsy Diagnosis

Epilepsy Diagnosis

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

edited, originally posted 5 months ago
A MyEpilepsyTeam Member said:

1980. But they found out later that I was born with it!

posted 4 months ago
A MyEpilepsyTeam Member said:

That's why I asked the year as well as changes concerning food, technology, shots, diseases, pollution, etc

posted 5 months ago
A MyEpilepsyTeam Member said:

TBI is difficult Mine was 7-2012
I went back to work after craineplastomy. Stress of corporate work place and scar tissue caused my Temporal Lobe Epilepsy 2014. I saw many local neurologist who could not get siezure control or were not capable of correct diagnosis. My Primary Care MD referred me to Mayo Clinic Epilepsy Monitoring Unit Jacksonville FL
I spent 1 week on 24/7 EEG MONITORING. Sleep deprivation loud sounds strobe lights and captured siezure activity and found the focal point of my siezure .I am thankful to be granmal siezure free since January 2019.THANK GOD! I now have Skype appointments with MayoTEAM Primary Care MD and I every 6 months. I see Primary Care MD every 3 months. All other types of siezures have dropped to ZERO
Trust GOD
Be kind
Follow JESUS
πŸ’žπŸ‘£πŸΎπŸ™πŸ½βœŒπŸŒŽπŸŽ΅πŸŽΆβš˜πŸŒ»πŸ’œβ˜

posted 5 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member A major problem for us was that research did not prove until 1995 that the epileptic partial seizures existed and likewise more details were known about the absence seizures. Thus, as my mom explained to me, she thought they were "Johnny being Johnny" moments when I suddenly went silent during a conversation or simply got up and walked away. And the neurologists had no clue, thus anything that was not a falling seizure in a teenager or an adult was diagnosed as panic attacks or pseudo seizures. And unfortunately, since research has not finished and been published to prove that the EEG can actually not display the changes that should be shown when someone is having an epileptic seizure while hooked up to an EEG. And as a result, most neurologists will not let their eyes and experience allow them to believe that regardless of what the EEG is not showing them, that they are witnessing an epileptic seizure. Thus even now people are being diagnosed with pseudo seizures, panic attacks, etc. when they have epilepsy (and what is worse this is happening when the patient had already been previously diagnosed by another neurologist as having epilepsy).

edited, originally posted 5 months ago
A MyEpilepsyTeam Member said:

I was diagnosed 2009 my neurologist said ut was caused by agitated stress I'm happy to now say I'm almost 3 years seizure free I don't get any warnings either

posted 2 months ago
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