I’ve had epilepsy pretty much all my life. I’m curious for those who have had epilepsy for all their lives if it gets easier mentally or do you still feel frustrated with your disability.

I ask this because as someone who has lived this more than 25 years, I’ve gotten past the acceptance phase eons ago but I do get frustrated with the reality of what I can and can’t do in life. I’m just wondering if it’s just a phase or does this kind of stuff go on even as you get older.

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

I had a conversation with a few people here. We all have had difficulties speaking. Getting confused, slurring words, dyslexia getting worse, not being able to put sentences together properly, etc.
If that’s a seizure, what type of seizure is it?
Or is it more likely just side-effects of medications?
Thanks.

I've been on 9 so far. You think by that point that they would just let me smoke and leave me alone dude 😂

I’m curious to find out your perspective on epilepsy. If someone who is newly diagnosed with E asked you if there was any hope of gaining seizure freedom, what would you say? Would you fill them with hope that they would be successful in achieving freedom, tell them that not everyone gets « cured » or something else altogether?

does rescue medications used in emergency for seizures work on non-epileptic seizures.
I mean the ones they use in hospitals to stop recurring seizures.

It hasn't even been 2 years yet and I've had grand mal, then nocturnal, now absence. Getting tested for autoimmune and now doctor wants to test me for MS too.

I'm new to epilepsy & this site. My 17yr old son was diagnosed in February. How do the mommies / parents deal with teenagers , epilepsy & school? Most days i'm not sure to keep my son at home or send him to school? its at a point where i am considering home schooling. Plse advise? I need help

I have been a teacher for 24 years. But last week, for the first time, I seized in front of my class. I was in the middle of a lesson. My kids were amazing. I have prepared every class on the first day of school with a just in case procedure, and they were rock stars. But for 23 years it was never needed. School seemed to become a safe haven from my seizures. I had them very infrequently over the years but never in school. I hit my head and have been sporting a black eye trying to teach these… read more