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When I feel a aura coming on I say " Get Lost " out loud, what makes me feel better, today I felt a seizure coming on I took deep breath said "Get Lost " leave me alone " it stopped the seizure occurring, but it did still scare me a bit.
I don’t drink alcohol anymore because of one the Medication I take. It’s Xcopri
So, this is just weird. Has anyone been shaky just in one hand? My right hand is shaking out of control, while my left hand is steady like a brick.
Now my Neurologist says mine is not a neuropathy, but what is called an Essential Tremor. It’s not unique to epileptics, but we commonly get one. It often involves one limb or a combination of regions… read more
does rescue medications used in emergency for seizures work on non-epileptic seizures.
I mean the ones they use in hospitals to stop recurring seizures.
My son has rescue meds administered after 1 min due to apnoea. He goes blue very quickly. He was moving after the tonic clonic phase had subsided. He digs his heels in and slides along the floor on… read more
I had a conversation with a few people here. We all have had difficulties speaking. Getting confused, slurring words, dyslexia getting worse, not being able to put sentences together properly, etc.
If that’s a seizure, what type of seizure is it?
Or is it more likely just side-effects of medications?
Thanks.
@Pamale6
I always had trouble speaking clearly when I was having an aura, which is a warning sign for a seizure.
Does anyone else get offended when a neurologist or hospital says your faking seizures when your not?
Np òne is denying that you're having seizures if told pseudo just from a different source. Any EEG during one that shows no change in brain waves detemines if non-epileptic. Still need meds to help… read more
I want to know how to live a normal life with seizures and not to be everyone's big problem?
If you’re living alone in the main town or city , that you’re are near convenience or grocery store and other types of stores, that you can walk or ride a bike to.
If you’re in a big city you… read more
So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.
Patricia, yes!
Mine is a Rollator, not one of those flimy ones made of metal. I was using someone elese's a goo while back. We have a rug in our doorway. It was snagged, and I fell on my falce. They called 911… read more
So is awareness during a seizure mean you can still respond and talk during one or does it mean your aware of your actions but can hear what's going on around you but can't engage or interact with anyone .
I have both sometimes I have the ones where I get auras and my right hand starts to shake uncontrollably. The other one is where I have a completely blank look on my face and do not know what's going… read more
I have tinnitus daily, and I have a VNS,
Thanks for your support 🙏.